Mum diagnosed and confused

FormerMember
FormerMember
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My mum is 62 and fit and well. She had a seizure out the blue 12 days ago, at 1st they thought was a stroke and was signs of an old stroke, after tests they found a lump on her lung. She was let home last week with medication (dexamathasone and anti seizure) all the doctor said to her when she left was lung cancer. She knows she has 2 brain lesions though. She called Friday after hearing nothing since being out and they said another hospital was looking at head scans Friday (just gone) and the lung scans would be this week. She's not even had a biopsy. We are all so confused and worried. She's still fine, pottering around at home just waiting in limbo. Please if anyone has any advice or ever been on the same situation would be appreciated.

  • Hi Jhoops I am sorry to hear about your mum. It is terrifying when you are told a loved one has cancer. It is usual to have ct scans before a biopsy, you will probably find that once the tests start there will be lots of different appointments. 

    There are a few people here in the lung group who are supporting loved ones, but there are also a couple of support groups on the community you can join, where there are others in a similar situation to yourself.

    Family and friends 

    Carers only 

    You can also call the Macmillan support line, 7 days a week from 8am until 8pm on 0808 808 00 00 

    Let us know how your mum gets on.

    Take care 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • FormerMember
    FormerMember

    Hi Jhoops 

    I can only say I know how she feels. 

    I'm 63 and have a recent diagnosis of lung cancer and 2 brain lesions , news that's hard to digest when I actually feel fine.

    I too am waiting for a lung biopsy so our stories are remarkably similar at this stage. 

  • FormerMember
    FormerMember in reply to FormerMember

    Wow they are and I'm glad you're feeling OK at the minute. She is absolutely fine, steroids are making her a bit restless but hopefully they're doing there job. She had a call to see the lung consultant next Tuesday but biopsy letter to say the 30th, they are trying to push that forward. Its now over 2 weeks and we are none the wiser.

  • FormerMember
    FormerMember in reply to FormerMember

    Yes, I'm finding the steroids a bit hard to cope with too.

    Your Mum and I seem to be living parallel lives.

    I wish I had a gem of wisdom to impart but unfortunately not. 

    Best wishes to your Mum. My daughter is very worried for me too but the last thing I want is for her life to be overshadowed by mine.

  • FormerMember
    FormerMember in reply to FormerMember

    My mum is very positive and said I need to be too but it is hard for us daughters as like you say you're fit and well otherwise, if my mum didn't have a seizure we still would never know. Keep me updated on how you're doing. Hoping my mum will know more Tuesday.

  • FormerMember
    FormerMember in reply to FormerMember

    Will do. I hope you get some answers.

    My big appointment is Wednesday. 

    Wishing you all the best.