Non Small Cell Lung Cancer

Hi Mr Mek welcome to the group, but sorry you find yourself here.  I am not surprised that your energy levels are so low whilst you are waiting for the transfusion. Hopefully once you have had the transfusion you will feel a bit better. 

I haven't had any personal experience of this, but hopefully someone will be along soon to share their experience with you. 

Wishing you all the best with the transfusion and your ongoing treatment. 

Hi Mr Mek

Im So sorry you are going through this, 

my mum has been diagnosed with LC , she had her first round of chemo and immunotherapy on the 2nd June. And also is due to have it 21 days, the first 3 days she was ok then she continually slept no energy level at all

, on Saturday she started shivering and shaking, her temp was a little high / rushed to the A&E on Saturday she still there now, All Her levels are very low.

They started her on aggressive anti biotics / and all The other meds to try and raise her levels,  her temp is still up and down now and she still on antibiotics, they are waiting still for cultures in the lab to see where this infection has come from,  

they said it’s due to the treatment it may of been to aggresive for her and may have to be adjusted, they to told her she may need a blood transfusion, when I spoke to Macmillan nurses they said unfortunately it is normal part of the chemo process, and some people unfortunately require extras support  medically with medicines, but it shouldn’t be a problem, and once’s treated shours feel better 

I know we are not as far into the treatment as you, but by the sounds of things they are doing everything they can to help you,

the Macmillan nurse said when oxygen levels are at a low in the blood a blood transfusion will be required, but it’s just extra support for your blood to carry the oxygen around in your system, and it’s great they have done this for you,

you  said your 18 months in to treatment, I was just wondering what your oncologist has said about your treatment,  Macmillan said there is a injection tht boots white blood count before u have treatment , maybe u could ask about this ? 

wishing you well, 

I know it’s not nice all these extra visits to hospital and blood transfusions and. Extra medicines , but some people’s bodies need that extra support, 

take care x

I've been diagnosed with non small cell lung cancer, have two lesions one at the lower part of the lung, and one on the airway as it goes into the lung, also the top part of the lung has collapsed.  I had to fight for my chemo as my consultant thought I wouldn't tolerate it, so the first was given at 75%. I managed to have my second at 100% and my third will be on the 23rd of June. I then have to have a CT scan. Depending on the results, is where we go from here. My diagnosis is T4N1M0, and at present they have given me 12 months. If they hadn't given me my Chemo, he gave me 6 to 12 weeks, and that was devastating.  But I'm still here, doing well, I think. So hope it all goes well with the scan, and I receive some positive news, its like being in limbo.

Hiya debsvp 

I’m so sorry you have lung cancer, but I’m glad you got your chemo. It makes me angry you had to fight for it, have they offered you any other treatment than the chemo?, my mum also has her next chemo on the 23rd June that will be her second one, the first one she was fine for a couple days, and then she got an infection, so I think they are going to lower the dosage on the next chemo, as it may of been to aggressive with the combination of immunotherapy aswell, 

I am so glad you are handling the chemo, that’s the big fight, handle the treatment and your half way there ;) 

I don’t know if my mum has asked what life expectancy will be once treatment is done,  but if she chose no treatment she would only of had 9 months, 

I wish you well and hope that next week chemo goes well for you 

lots of hugs xx

Morning,Train spotter, thanks for your reply, I've been putting it off, posting on here, but have been reading people's experiences,  and they are so varied. And treatments offered, are also different. 

After my third chemo next week, I have to go for a CT scan, booked for the 8th July, then see the consultant on the 12th. Depending on the results, it depends on what treatment I'll be offered, they did say I may get a fourth round of chemo, maybe radiotherapy,  but to be honest no positives. I know they are in a difficult position, and don't want to give you false hope, but I find my consultant very matter of fact. If I hadn't managed to talk him round , to at least try the chemo, I would have been very poorly by now, with no other treatments on offer.

I know we are all different,  and how we react to the chemo, I've now lost all my hair, but don't mind it will grow back.

I wish your Mum well, and hope she manages her next round of chemo, even if it is at a reduced rate. I didn't feel alot of difference between my reduced rate and my full dose of chemo , just a bit more tired, and terrible constipation. After my chemo I have anti-sickness, steriods and injections for three days, that I self administer in my stomach. The injections give me severe pain in my bones and joints.

So if I have my chemo on Wednesday,  by Friday all the lovley side effects start to kick in, and I would say I'm not myself for about a week. Then each day things improve, and I'm well, ready for my next chemo.

Keep strong, and positive, and I've read where there is life, there is hope. I've buckets full at present, and my daughter especially is a rock, as I'm sure you are to your Mum.

Take care, hugs xxx

Hi  may I ask how u was dinosed. Am going through a lot at the moment was it a chest X-ray am really sorry to her about your. Dinosed  love 

Sorry to her about your dinosed. Was it a normal chest X-ray u had I’ve been having so many problems 

I had been to see my GP as I was getting breathless, I didn't have a cough, or bringing up any rubbish off my chest as they sat to look out for. I then ended up on three weeks of antibiotics and two weeks of steriods. I was getting ready for work and went upstairs and it was like I'd hit a brick wall, couldn't breath, was like I was drowning. Phoned 999 and ended up going into hospital as my 02, sats were 82/84 %. Spent four days in hospital, on admission I had an x-ray and two days later had a CT scan. That same week I had to back for the camera and biopsy. Its like a waiting game between each appointment,  and I kept on hitting, bank Holidays. I've managed to keep positive, know it can not be cured, but at present hoping there is more treatment,  they will offer me. 

Hugs xx

Hi love really sorry to her about your cancer. How long have u been having treatment they sent away a sample of spit I had a chest X-ray in Oct and am due to have another one tomorrow and I feel like they going tell me I’ve got lung cancer I’ve got 2 children who are autistic they need me and my hubby 

Hello,

Just read this thread, I really hope you can keep up with the fight, your story so far is not the most cheerful I have read, but it should be evidence enough that you could take the treatment! 

Thank you for sharing, I hope it is helpful for you too.

Best wishes for the treatment next week and moving forward.

x