So very new to this.......

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My husband of nearly 2 years has been told he has lung cancer and has been going through loads of tests.  We get all the results on 17th June.  Has anyone else been playing the waiting game ? I really dont know where to turn.

  • Hi LC and welcome to the group, but so sorry you to hear about your husband.  A lung cancer diagnoses does seem to be a long process, but there is a pathway that has to be followed, with numerous tests, scans and biopsies. It is the reporting of the scans and biopsies that can take the time. There is then a MDT meeting which involves the oncologist and a team of health professionals, who all discuss these results and come up with the best treatment plan. 

    There are a lot of people here in the lung group, who are on several different treatments, so there are people here who can share their experience with you. There are also a few people here who are supporting a loved one like yourself. There are also a couple of other support groups in the community you can join where you can share your experience and get support with others who are caring for loved ones.

    Family and friends 

    Carers only

    You will find several people there who are going through a similar situation to yourself.  You can also call the Macmillan support helpline for support 7 days a week from 8am til 8pm on 0808 808 00 00 

    Please let us know how your husband gets on.

    Take care 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hi,

    I just wanted to say, sorry about your partners diagnosis,my mum has been diagnosed with lung cancer,

    the waiting was awful I think we all know to well how that  feels, 

    they said the wait was because of biopsies , they put treatment on the biopsies to see which will be the best treatment , so it’s the waiting game, 

    they need to determine which type of lung cancer it is aswell

    my mum was going through all this Easter Sunday this year, and she finally started treatment on 2nd June last week

    once you sit down with the oncologist and you know exactly. What cancer and treatment plan is in place, you kind of go with the flow, I won’t say you deal with it cuz something like this you can never deal with it, 

    it is a rollercoaster of emotions, 

    I hope your partner is feeling ok, there are lots of wonderful positive stories on here of people living with LC. And amazing treatments these days, 

    thinking of you, and hope your husband is ok 

    xx

  • Hi Daisy, I am sorry your husband has been informed he has lung Cancer, the first few weeks are the worst, you can just think the worst (I know I did just and the same time as  lockdown came in) I had got my first Xray result at the end of February last year, by mid June had finished my 20 sessions of  Radiotherapy, 55 Greys of radiation, (my LC was inoperable, but had not spread so have not had chemotherapy or anything else), radiation therapy was not as bad as I thought it would be, it is still a waiting game for me now, as the last time I saw an Oncologist was on March 2nd, He said he would book an appointment for 4 months time, my tumour had shrunk by 50% with the radiation therapy, which is good, just waiting about not knowing what is going on is still hard though, but have educated myself on Cancer, so do not now think of the worst outcome, as treatment for LC has proceeded at a fast pace in recent years.

     Once you have  the diagnosis result, next week, and a plan for his treatment, this is better than not knowing, hopefully lockdown will ease off now and normal services may resume, as well. 

     I wish your Husband all the best and yourself.

  • thank you this is so positive........ so glad things are looking good for you. take care of you xx

  • Thank you for your reply.  My husband and I have spoken recently to Macmillan individually which has helped both of us.  This forum I am sure is going to be a great support.  It's great to know we are not alone and can draw from others experiences and advice.  thank you xx