Feeling lost and helpless

Hi Lillys,

Sorry to hear about your mother in law, it seems she has been tolerating her immunotherapy well so far, blood tests before treatment must be coming back ok and scans must be showing good signs and the trips to hospital appear to show nothing untoward. Has she only been like this since having her double dose of immunotherapy? If not before, at her next treatment these issues should be told to her team.

I completed 2 years of immunotherapy (Pembrolazumab) with no issues or side effects apart from an itch. The second half of my treatment was as your mother in law, double dose every six weeks. I had no issues with that although it did feel slightly different to the 3 weekly cycle, my chest always felt a bit heavy for a few days afterwards. Maybe you could ask for her to go back to three weekly treatment to see if that changes anything but as always any problems need to be raised with her team. Have they not noticed these problems themselves as there must be some weight loss which would be picked up the day of her treatment. Sorry I can’t be of much help but hopefully she will get sorted soon

Take care

Hi Julie, we actually had to admit my mother in law back to hospital last night it’s like she has just given up. She has only had one maybe two courses of the stronger dose and seemed to be ok just the odd sickness and diarrhoea we as a family thought maybe it would be best to suggest her to go back to the 3week treatment but she has just had this drastic turned around in between her treatment and just refuses to eat or drink she was due to go for her treatment last week but couldn’t go ahead with her being in hospital at the time. When we contacted the hospital dealing with her treatment they just suggested to take her straight to a&e and she’s just in and out of there now. Hospitals are so hard to deal with at the minute with covid as we can’t get in ourselves to talk to the doctor and phones are just ringing out or engaged.  

xx

Hi Lilllys

Sorry your mother in law is back in hospital, hopefully someone will get a grip on things and get her back on track