EGFR Lung Cancer [Image of a rash included]

FormerMember
FormerMember
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Hi. I was diagnosed back in December 2019.

And started to take the prescribed medication called Dacomitinib in January 2020.

Started with 45mg. Did not end very well. As the skin rashes was too much and have to be in the hospital for a week.

Changed to 30mg. Still not very good.

Now im in 15mg. And I still have the skin rashes.

I tried different creams. But seems nothing is actually working. And I dont think I will ever have a clear skin anytime soon.

Does anyone experiencing the same? What can you advise?

Thanks.

  • FormerMember
    FormerMember

    I'm on osimertinib (Tagrisso). One month in. After two weeks my skin was terrible. I was given steroid cream and Doxycycline tablets which have calmed it down. Still not great and finished course of tablets now so we'll see how it goes. I'm a secondary school teacher and glad of the face masks for now! 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi. Thanks for that info. I will definitely ask my onco to prescribed those to me.

    I have to shave my hair because the rashes was worst in my scalp. Between keeping my healty hair or have enough sleep, I choose sleep. Slight smile

    Do you mind if you can share what kind of face mask are you using?

    This is my skin since January 2020 up to now. 

    Im on Dacomitinib.

    Now im trying these MooGoo products. From shampoo to creams. This time it helps. Its not so itchy. But my skin is and probably will not go back as it used to be. Sweat

  • FormerMember
    FormerMember in reply to FormerMember

    That looks really sore. I was given Betnovate cream (betamethasone valerate) and also a scalp treatment with the same active ingredient. With the Doxycycline it definitely made my skin more comfortable, even if it hasn't completely got rid of the spots. Got to be worth a go if you haven't tried it already! By face masks I just mean my usual Covid face mask which fortunately helped to cover my face to minimise questions from nosy teenagers!

  • FormerMember
    FormerMember in reply to FormerMember

    i will speak to my onco and ask about that. thank you so much. I read your profile. you mentioned that you had PET scan. how was that different from the CT scan? And did you requested that in the first place? thanks.

  • FormerMember
    FormerMember in reply to FormerMember

    For the PET CT scan they inject you with a radioactive dye first then give it an hour to work round your body. The cancer absorbs more of it than normal cells and so it glows on the scan. I was offered it as a double check when the CT scan didn't show any reason for my chest pain. Not all hospitals do it - I had to travel to Leicester.

  • FormerMember
    FormerMember in reply to FormerMember

    hi. probably thats why. I had xray and CTs. Hope there will be a cure soon.