Mum lung cancer spread to leg/bones

Hi, so sorry to hear about your mum, I hope she makes a full recovery from her surgery. Yes, it does sound terrifying. With regard to your mum mentioning her leg pain at appointments, I think this should have been checked sooner, especially with her diagnosis of stage 4. I think a lot of oncologists dismiss aches and pains as psychological.

I had one particular oncologist, who I saw for my first follow up after receiving radiotherapy for lung cancer. I mentioned to him that two weeks after finishing my treatment I had a full day of heavy nosebleeds, I had three episodes throughout the day where it was literally like a tap of fresh red blood, the third bleed and last bleed lasted 20 minutes with large clots which left me feeling quite drained. I also told him I had never had a nosebleed in my life. His reply to me was that I was just being "paranoid", he then went on to say; "next time you have a headache you will think you have a brain tumour". You could see the nurse chaperone in the room with me felt quite embarrassed by his remarks. Suffice to say, a few months later I was told by another oncologist (a nice empathetic one) that, although rare, nosebleeds can be a side-effect of radiotherapy to the lungs.

Very best wishes to you and your mum.

Ann

Omg Ann, some of these oncologist really do need to give their own heads a wobble, and learn the word empathy! The stories I have heard over the years on this forum, I shouldn’t be surprised that you were spoken to like that, but that really was dreadful. X 

Hi Allycat  I am sorry to hear this news about your mum. This must be really scary for you both. I am not surprised you feel let down by the hospital. It must of been a very troublesome pain for your mum if she kept mentioning it, it is frustrating that they didn’t pick it up earlier. You can speak to PALS about this if you want to put in a complaint. I’ll pop a link to PALS below, but they will have an office at your mums hospital. 

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