Hi,
New Here
After all the tests and the waiting and the tests and the more waiting - my mum was today diagnosed with small cell lung cancer - I’m not entirely sure if it’s in advanced stages as yet - I know it’s in lymph nodes - we will be meeting with oncologists more tomorrow to chat more in depth and see what to do moving forward . I am and will be my mums primary almost sole caregiver - I thought might be helpful for me to join and seek advice or help as this journey is about to progress . I don’t want to keep looking and googling - it’s not helpful - thought might be kinder on myself talking to others x
Hi Andie86
Welcome to our community, I hope you find it as useful as I do.
My wfie's cancer is very different but I well remember what seems like forever from the start to getting a diagnosis let alone moving to any kind of treatment plan.
There will be lots of people on here with more direct experience of lung cancer, my wife has lots of mets in her lungs so there is something in common there but mostly I post in our Family and friends forum and Carers only forum .. People often describe a diagnosis as a tsunami washing over everyone.
Being a carer can be really rewarding but is also very demanding and unless people have been there it can be really difficult to understand, the positive is there are lots of us out there so well done in reaching out.
<<hugs>>
Steve
Hi love I have the same lung cancer as your mum and has hond jnyk the lymph node's I've been on dabrafenib and trametinib for 3 months now am due my 3 mth ct scan Tuesday to see if tumours has shrank but their is quite a few options they will talk to you about it's hard taking it all in my advise is I know you will be with uour mum but take an extra person with you so they can get on board whats been decided my daughter come with me but my sister in law came as well in case it got a bit too much on my daughter good luck love stay positive that's my moto am on here any time you want to chat sending xxx
Hello my mum has the same and we found out about 4 weeks ago. She lives quite far from me but I'm moving her to mine very soon before any treatment starts (if that's an option, waiting to hear). I'll be her sole carer too and have to support my dad who is also quite poorly. It's all quite overwhelming when I stop and think but keeping busy as much as possible and determined to do my best for her xx
Hi Guys ,
Thanks for responding . Yes there’s been a minefield of information to take in . She should be starting treatment next Tuesday - all going well she will be on 3 weekly cycles . I have taken 4 weeks off work at this stage to try navigate through this time . I already feel overwhelmed so can can’t imagine how she must be feeling . I will be the main source of support throughout - I know at this stage she is frightened to be in on her own so I’ll take the steps to be in the home as much as I can and then get someone else to relieve me for a day or two when I can but have limited family . How has others managed ? I know the priority is to be here - I’ve not felt pressure from my partner etc but there would be times I’d like to be able to be with them overnight for some support but none of this seems very viable at the moment - I am not a selfish person at all - I want to be able to do the best I can but it’s all seems already overwhelming the thoughts of trying to juggle everything whilst trying to let this all sink in .
You are doing everything you can for her she must be very proud of you if it helps my daughter is the same as you but am lucky she only lives about 10 minutes away I have lung cancer no cure but on treatment to shrink tumours and stop more spread as parent's we do feel guilty I only have one child so everything falls on her she works 12hr shift week in a nursing home for the dementia she has a11yr old and a 14 yr old on top of that she comes over keeps my home clean takes me to all appointments gets what I need in as a parent we are very very lucky to have lovely caring children who should be very proud of them self's because every thing you do she will be truly thankyou xx
Hi love you should be very proud of yourself what you are doing once you regerster her with your doctor you should get some surport I do love they ring to see if theirs anything they can do please ifyou need any thing just ask also get intough with your council they too also offer help and can be very good you are taking on alot and just rember to look after yourself as well and remember you matter as well you should feel proud your self love your a special person to be doing what your doing for your mum and dad xxx
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