Trying to be strong, everything is getting a bit much, four years since diagnosed April 2020 T2 N0 M0, External beam radiation only, as COVID lock down at same time so no operations.
Never recovered fully after radiation, as was followed by radiation Pnumonitis for 18 months, had no sign of cancer November 2021, then had 3rd covid vaccine November 2021, that really messed me up, coughed blood up went to A&E, bloods showing thrombotic tracer, transfer to another hospital, also chest pains meant A&E few times, cardiac stress tests etc showed nothing irregular, then got Covid, August 2022, still chest pains after that, BP also going dangerously high like a yo yo throughout 2023 also respiration not good as diagnosed emphysema and COPD in October 2023 CT scan.
2024 thought at last getting better breathing better than ever been since diagnosed, able to do stuff normally, with out chest pain and was breathing better, brilliant.
Started coughing blood up 22nd July 2024 A&E all day 10 hours, had prior appointment with my oncologist 23rd the CT scan showed mass on left lung, from CT scan on the 13th June (Had PIP benefit Review 24th) PET scan 26th July, saw my Oncologist 6th August, PET scan FDG reading 20, 20mm dome shaped growth, not metastasized which is good, same place as last, oncologist says may be operable, have a test appointment to see if I am fit enough for an operation, that's on 16th Aug, Biopsy appointment 29th Aug confirm.
To top all this a letter today from PIP stopping PIP Benefit as from end July.
A lot bewildered by all this as could be in Hospital having operation September may be.
Others views on LC Re occurrence would be helpful.
Hi BGJ , I have COPD and Emphysema and they managed to operate on me , like you I had to have breathing test to see if I was fit for operation thankfully I was and had the VATS which is less intrusive , my recurrance is on "stitch line " and I had 4 weeks radiotherapy which shrunk the small growth .
It's frightening when you hear it's recurred but it's not went for a wander to any other parts of your body , this is a plus sign .
That bad stopping your PIP , appeal against it of you can , I'm getting it also but in November it'll be changed to ADP and they might want a review so just have to wait and see .
Keep in touch and let me know how you get on with tests .
Take care x
Sandra
Hi Sandra sorry to hear you also have COPD and Emphysema, thanks for sharing your experience, good they could do VATS for you,hope the radiation therapy does its work completely.
Will have to see what they propose, thats if I pass stress test, been out on my electric bike, pedaling harder to get my leg muscles strengthened up a bit, and strangely my respiratory not that bad either, not that I am exerting myself too much.
In regard to PIP spoke to a lovely Lady at Macmillans support benefit help, and she is going to ring DWP with me Tuesday to get assessors report etc.
The PIP report stopping my PIP is not just poor but lacking clarity in some places, was pretty rushed mind as assessment 24th July and their letter dated 30th, lucky got the PET scan before 30th as that counts in as visual diagnosis before PIP stopped believe.
On my PIP mobility part it says "There appears to be no musculoskeletal factors or diagnosed conditions that would impede mobility"
I had an industrial accident to my left foot 2011, the big toe and next two amputated, also foot de gloved, put 1/2 mm thigh graft skin to replace where foot was de gloved which includes area where weight bearing planter skin was, so it wears out if I walk on it too far and then sometimes gets infected. hence I can only use an electric pedal bike to get about.
Not something you can miss really.
Hope your PIP to ADP goes smoothly, and will let you know how my tests go.
All the best x
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