I am now over the 12 month mark since my operation ,last year on the 22nd july i had a lobectomy to remove a nodule which was 20% cancerous ,i was lucky they found it soon enough ,since then i have had CT scans and x.rays ,x.rays have been every 3 months and my last one just came back clear again ,i saw my surgeon on the 29th of august and she told me there was no recurrance and that as i have no other symptoms ,i will have 2 more x.rays ,then next year in July i will have a full body scan ,if that also becomes clear then there will be no reason for her to see me again .but i will carry on seeing my specialist team ,does anyone know if the 3 month x.rays and scan s decrease or do these carry on for the full 5 years
Thankyou Lolie ,I seem to be on a never ending roller coster ,as i see my team every 3 months and i see my surgeon every 3 months as well ,I know they are doing what they think is right and it probably is ,but it just seems overwhelming ,as each time i have to have an x.ray ,so this year alone i have had 8 x.rays ,each time i get myself so worked up about it all ,my stress levels are terrible ,i dont want to sound ungrateful ,but i just think its ott ,i am sure 1 x.ray should be enough for my team and surgeon ,but i have 2 within 6 weeks of each other
Goodness me. That does sound like a lot.
I only saw my surgeon once following my surgery and I required an x-ray before that appointment.
I see my radiation oncology team every 3 months and my haematologist every 6 months (I've had lymphoma as well) and they've always used the same set of images.
It might be a good idea to bring it up with your treating team. Imaging itself is not without risk so it's reasonable to ask for clarification of why the benefits outweigh the risk at the moment.
Wow
Hi there Christie.K
I had a lobectomy and segment removed and have been cast out. I have a CT scan monitoring my bowel cancer Aug 21 and my Lung cancer they’re two separate cancers In September
She said they got it and they weren’t worried
Me on the other had two cancers in two years I would like slightly more concern and monitoring!
It seems different trust’s definitely work in different ways.
Ann
Yeah definitely, my xrays are every 6 month now , I'm scared that's not enough and ct scan yearly now , like yourself Ann after having cancer twice u expect a come back....or is just me
I have already brought this up with my team though they said they would do 1 x.ray every 3 months it seems no one is listening .i will mention it again .
My guess would be that there's no co-ordination between the two and that your team doesn't see themselves as having any input into what the surgeon requires.
No it’s not just you.
I feel that they’re not monitoring at all. I’m two years LAR and no colonoscopy. I feel I can’t push as the NHS seem as if their struggling
Let’s hope I don’t regret it
Ann
I think you are probably right ,i did also ask my surgeon when i last saw her ,and she said i need an x.ray everytime i see her but if the x.ray is within the 3 months that i see my team then i would not need one for them as they could use the one she used ,but they dont listen to each other and both send me for x.rays
I would push if you have not had one for two years that is such a long time
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