Hi,
I had a upper left lobectomy 3 months ago and it’s hoped the cancer has been removed and six months checks is the next steps.
it’s great they have caught and removed the cancer but I am still struggling to cope emotionally, from diagnosis to surgery it was less than three months so no time to really think or worry about it all. I think is all starting now.
post op I am now struggling with anxiety panic attacks and depression some of my thoughts are very dark, feeling worthless. At times I don’t know where to turn. I seem to get stressed very easily.
i thought getting back to work would be a good thing, doing a few hours a week. Unfortunately I have found support from work has been weak ( in my eyes) a quick chat on the phone and a few text messages.
I struggle with breathing quite a lot as I also have pulmonary fibrosis and emphysema. sometimes just going from the lounge to kitchen leaves me breathless At times l have shortness of breath and the inhalers don’t work. A lingering chest infection hasn’t helped.
my partner and me have always been happy in our own company over the past thirty years so there are no friends or social group to lean on.
mark
Hi Mark,
Me too, sort of. This survival thing is weird. We go though a period of thinking we are going to die, cope with that as best we can (I found denial was really good!) and then there's this big anti-climax when we're still alive and they are telling us about regular scans for the next 5 years. I've got 5 years? I had got all my coping mechanisms set up for 5 months... On top of that I'm painfully aware that most of the people reading this would give anything to be where I am - what on earth am I thinking and what kind of ingrate am I? And of course we've got 5 years of scans when it could all go horribly wrong again at any time.
It is all something of a mind-f***. I don't think we'd be normal if we just shrugged it all off and carried on like nothing had happened. We're dealing with major stress unwinding itself in our minds. Different people will react differently, but things will get better - that's how the mind works.
I'm a few months further along than you (my lobectomy was in January). My breathing is still improving, but I'm still out of breath more often than I'd like - I'm starting to think it might be permanent, but that's fair as I've less lung than I used to have. The people I know think I'm completely back to normal the way I used to be - they don't see me having to rest after walking up the stairs that I used to jog up.
kind regards
Steve
Hi Steve, thanks for taking the time to respond.
So it’s not just me then
so many emotions so much panic and despair. It’s taking a lot to try and keep on top of it.
BUT there is hope, the lobectomy was a great success apparently and hopefully 5 years of checks will only be that.
We have so many comrades within the online community here who aren’t so lucky and my heart goes out to them.
people l know conversationally have said I shouldn’t be trying to return to my job but that was my goal. Yesterday my gp signed me off long term. “ if your job isn’t having your bum on a chair you can’t do it” his quote.
I’m on mirtazapine 45mg a day now so I hope it will help get my mood back up.
Unfortunately also yesterday yet another chest infection so more antibiotics plus a new pill.. steroids
I am hoping the breathing may still improve but with the underlying conditions I will probably have to accept a much smaller improvement.
mark
Hi the Markthecook
Im sad to read your set back but I am not surprised I think it’s normal.
Be kind to yourself, just do what you feel like and if you need a quiet day that’s fine a good day you can celebrate
I had a six hour bowel cancer op August 2021 and by the end of November I didn’t get up every morning shouting I am lucky to be alive
Then I felt bloody guilt for not jumping for joy. I phoned my GP who gave me serotonin after a month a literal black cloud lifted then I got the call back no one wants. Lung cancer
So again I should be jumping for joy as they operated and good margins blah blah.blah
But as I type this my breathing isn’t great. I now have allergies, only discovered when I went to Spain and my chest was amazing. Truly amazing. I can’t live in Spain though my bro could sort it as my Hubbys got Parkinson’s , NAFLD and a heart condition
Blimey I’m gonna get my little violin out in a mo.
Anyway I’m sorry if I’ve made you feel worse but wanted you to know that your reaction normal.
Try and plan something nice to do at least once a week
Mine was breakfast club. Thursday mornings are great
I hope the happy pils do their magic.
Sending you a virtual hug
Ann
Hey Ann
thanks for comments. They lifted my spirits and left me smiling and helped get me through a naff day so much at 9 30pm I am feeling pretty good.
A wee cake just for you
Yummy.
And it’s fat free.
perfect
You take care and chat anytime.
Ann
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