NSCLCwith mets

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Hi all I’ve nit been on here for a while but thought it may help someone if I give an update on my husbands condition. He was diagnosed with NSCLC with mets in February this year. He started chemo/immuno therapy in April. He’s now had 4 cycles. He didn’t suffer as bad as we expected after each cycle. However he suffered severe back pain which turned out to be tumours on his spine and was treated with radiotherapy just after receiving the 4th cycle. That was 2 was sgo and he still feels unwell ie no energy not much appetite low mood and feeling sick. He also had a CT scan and we got the results yesterday. The tumourscin his lung have shrunk significantly in one lung and have almost disappeared in the other lung. We were over the moon when they gave us the news. Going forward he will keep having chemo/immuno every 3 weeks for 4 more cycles with a scan at the end of it. He knows the results are good but he’s quite low st the thought of more treatment and wary of how long this will continue. Is anyone else in the same position or have a similar experience. I think he just needs an idea of how long this will go on for so he can prepare himself mentally. I know every case is different but any info will help I’m sure. Hugs to all of you x

  • I was diagnosed in October 2015...NSCLC with mets..even Brain tumor removed. Still here and living, my immuno therapy just stopped and now only scans every 3 months. 

  • Similar story here. Secondary brain tumour treated first then lung tumour found. Immunotherapy for the lungs over 5 years dragged me back from stage 4 to stage 1 and operable. Lower right lobectomy has left me cancer free and getting regular brain MRI thorax CT scans, which will last over 5 years. I'm 70 now.

    Throughout my attitude has been I don't need a cure today, I just need to be kept alive until the next best thing comes off clinical trial. Side effects are never pleasant, but if I'm alive to feel them that's better than the alternative. Stick with it.

    I found getting through the side effects needs a new mindset. It's not about doing all the right things like it used to be, it's now about finding out which right things are now wrong for an immune system that has gone crazy. Can't fight it or reason with it, just humour it and stop doing those right things that should work but don't any more.

    kind regards
    Steve

  • Thanks Steve that’s very encouraging and I believe you are right about the mindset. Thank you so much.  Hugsx

  • Thank you that’s very encouraging to hear and will help us keep positive. Hugs x

  • Thanks for sharing Pet &Steve

    Your stories give amazing hope to all of us

    Best wishes 

    Ann 

    Ann
     ‍Art