discharge from hospice

Former Member
Former Member
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Hi, 

HAving had my partner is a hospice for the last 3 weeks the decision is now to discharge him even though i am in fear of what will happen next.He went in as he was very unwell and i wasnt coping 

The physio  will come to the house next week to asses what is needed and how suitable things are re a hospital bed etc. As we have a small house and small rooms i can not see where a bed will fit in.Also carers will be sorted out to come in 4 times a day. All this is a massive worry to me as they have said that my partner will have to be confined to 1 floor of the house and the bathroom is upstairs, He will not be able to do stairs. im sorry that i am the way i am but i am not good at having people in the house  i admit this, i will struggle but i know as my partner has cancer i will have to cope somehow. What do these " carers" do? AS he has a catheter in and pads will they see to all this for him? Will they ensure he eats as he wasnt before he went in the hospice. He was such a lovley kind man before but he can get quite awkward with me now. The last 6 months have been terrible and  i dont know what to think or feel . I am in shock they are thinking to discharge him as he was so unwell last week but has rallied. Anyone got any suggestions or anything to ease the worry i have over all this. THankyou.

  • Hi MissCJ I am so sorry, I can tell this is stressing you. Please call the Macmillan support line and speak to one of the advisors there, they will be able to talk you through everything. 

    0808 808 00 00. It is a free call number and is completely confidential. You will feel better after making the call I promise xx 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Former Member
    Former Member in reply to chellesimo

    I have rung the support line and they advised me to read a booklet, going home from hospital. I know i am racing ahead of myself and this morinng when i was faced with the physio and the doctor and and junior doctor i just went numb. Its this bed thing that is worrying me  as i say we have a small house with small rooms and im not young myslef at age 70 , i cant be clmbing over beds and furniture to get to the kitchen as i know someone who ended up having to do just that. the worry of all this is making me feel awful. Sorry im just a pain. 

  • No you are not a pain, it is natural to be worrying about all this. They will be coming out to assess your home to see if it is possible. Make sure you air your concerns during the assessment. I feel for you MissCJ I really do, having him home is a huge responsibility, but it does sound like you will have a lot of support.

    Have you joined the Supporting someone with incurable cancer forum

    I’m sure you will find other people there in a similar situation, we are here as well as a listening ear xx 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge