Been awake since 330am , lots of pain in shoulder, neck / earache and the ever present throbbing headache … and of course anxiety has stepped in …. I’m feeling more unwell each day whether it be actual physical symptoms or anxiety induced symptoms but generally feeling unwell , headache , lightheaded ,I’ve just got scared that these symptoms are worsening whilst I’m still waiting for this petscan and EBUS to take place and the 4 am madness has kicked in …. Fear of full prognosis ,fear of treatment, fear of leaving my family …. I’m worried that feeling so unwell will stop these tests or mean that by the time I get to my full prognosis I’ll be so ill I won’t have a treatment plan …. I can’t find my big girl pants anywhere at the moment , I’ve looked for them everywhere including under the settee but only found 10p and a biscuit ! Did anyone else feel really unwell waiting the tests? Gp put me on Bp meds Wednesday because my BP kept going through the roof and I’m wondering if it side effects from them ? Of course can’t speak to them now until Tuesday ….I need to sleep but feel like a coiled spring ..,, I’m so grateful for this forum , I’d go bonkers without it right now …. Wee small hours rant over ! But any words of wisdom when you all wake up will be gratefully received Elly x
Hi elly ..I feel the same ,I have had the ebus and they diagnosed T4N2M0 ..now waiting for the treatment plan ..but I felt well before now everyday I'm getting tired ,new pains and I don't know if it's I my head or really getting worse and it's going to be too late before they start treatment ..I was sorry to read your post but you did make me smile about your big girl pants x
Hi Cath sorry you’re here too but thanks for the reply … I’ve yet to have the EBUS , quietly frightened stiff of that too but know it has to be done . Hope it was ok for you ? I don’t even understand your numbers ? The headaches have been prevalent since around April when I started getting tired etc ,and started the long process of Gp visits etc but GP put me in BP meds the other day and I don’t know if it’s them that’s making me feel a bit worse …. Anyway good luck with your treatment plan please keep me posted with updates Elly
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