Paraneoplastic cerebellum syndrome

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Hi,

I am new here. My brother has lung cancer diagnosed in January this year. Had six rounds of chemo two failed EBUS. He was told that there is nothing more they can do. My question is does anyone have paraneoplastic cerebellum disease/syndrome as part of there illness? I know it’s very rare and there is little to no advice out there. We are really struggling he is on palliative care just looking for advice. Thanks for reading xx

Kegsy over 2 years ago

Hi Serendipity

I do not have the cerebellum version; however, I do have paraneoplastic syndrome (PNS) caused by my SCLC. It was the increasing effects of the PNS that got me to the GP, which led to the SCLC diagnosis. There was a small chance that the PNS would go away after the chemo; unfortunately, it didn't. and I have had to learn to live with it. Luckily my symptom is the kinder peripheral neuropathy, which is only in my limbs.

As the cancer treatments hasn't had a positive impact on your brother's PN cerebellum syndrome, has he tried immunosuppressants?

I am so sorry that this is the only contribution I can offer.

Kegsy x

"If you are going through hell, keep going" ; Sir Winston Churchill

" Cancer may take my life; however it will not become my life" Kegsy August 2011

Serendipity over 2 years ago in reply to Kegsy

Thanks for the reply. Unfortunately his is catastrophic lost all mobility, speech and swallowing it’s liked locked in syndrome. Breaks my heart I think it’s the fact that there is no help support or advice makes it so much harder.

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