Hi I am new here so hope I’m posting correctly. I am caring for my lovely mum who was diagnosed with lung 2 years ago and was on Tagrisso up until a couple of weeks ago as her blood levels and sodium dropped and oncology wouldn’t prescribe a new prescription until rectified, but since about March this year, things have been going down hill. I moved her into my house (different location) to where she lived and I have been a battle getting help and support from any palliative or health services, as out of her area until she was rushed into A&E this week with TIA symptoms. Now palliative are put in place with what seems the world and his daughter hospital referrals, they let me take my mum back to my place for me to care for her. Occupational therapy, physiotherapy and palliative are now involved. I feel so angry, sad, in pain watching my mum suffer her pain, I feel I am drowning in my own emotions. I know she is getting weaker and cancer has spreaded stage 4 and I just don’t know what to do anymore. we have been so close all our years and I am struggling with knowing I don’t have to much longer with her and not sure how I will live without my mum. My children have been amazing support but have there own lives. I just needed to say this to someone today as feel so so sad.
Hi Angel1237139a I am so sorry to hear that you and your mum are going through this. I lost my mum 12 years ago to ovarian cancer, then last year I lost my step mum, and it felt like I was reliving it all over again. I was very close to my mum, and I helped to nurse her at home, so I know how terribly hard it is to watch someone fade away in front of you.
Know that you are doing the very best you can for your mum. You have looked after her for all this time on your own, I am glad you now have support from the palliative team.
I am glad you have reached out here, as it is important that you have a safe place to come and talk. You can also join the Supporting someone with incurable cancer forum where you will find other people in a similar position to yourself. You can also call the MacMillan support line 7 days a week from 8am until 8pm on 0808 808 00 00 to chat to someone there.
I know you said that your children have their own lives, but I think it is also important that you open up to them about how you are feeling. We all need support from our loved ones at a time like this. Take care.
Sorry for your losses and Thank you for your reply, yes my children have been a wonderful support, everyday is worse and our pain gets deeper. I have always been a strong support to others around me in such situations but now I am going through it, I am really struggling. Best wishes to you.
Sorry to see you here
Trust me you are doing a wonderful thing for your mum having her at your home will be the best thing for your mum. Yes it is difficult sometimes and your emotions and feelings are all perfectly normal. It is a shame you didn't get the support you needed before your mum was admitted to a and e, it worries me how the standard of care is so different around the country even sometimes from nurse to nurse.
Stay strong and having your family around you is just as important as you being there for your mum
You are your mums shining star
Adrian
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