Stage 4 lung cancer blues

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Stage 4 incurable lung cancer with mets diagnosed December 21. Totally shocked as it came out of the blue. Currently on a trial drug tablet form targeted therapy. Although I count myself lucky to be on this trial and expectation for prolonging my life is good I suffer dreadfully with anxiety and emotional lows. My life has changed from being active at work. (Going to retire in August) given up volunteering in the community due to shielding and spending time sorting finances and thinking of planning a funeral. How is everyone else coping with their emotions ?

  • Hi TinaB24

    i am sorry you find yourself in this situation, I sympathise with you as my situation is very similar. Dealing with the ups and downs can be very trying I know, I am on a low at the moments but thanks to good people on here I am getting through it, the lows are the most difficult to deal with just take it one day at a time, things will get better, I find chatting with people on here helps lots. Have a good day and try to do something to make you happy today

    Donna

  • Former Member
    Former Member in reply to Hamhat

    Hi, 

    I've been diagnosed with stage 4 lung cancer since March this year, out of the blue too.  Just started my first targeted treatment drug tablets today, very apprehensive before taking it as not sure what size effects it will caused me.  I was health and fit,  just did not know how it came about.  Just wondering if anyone having the same treatment drugs as me which is Osimertinib and what are the size effects you are currently experiencing? thanks

  • Former Member
    Former Member

    Hi,  

    I've been diagnosed with stage 4 lung cancer since March this year, out of the blue too.  Just started my first targeted treatment drug tablets today, very apprehensive before taking it as not sure what size effects it will caused me.  I was health and fit,  just did not know how it came about.  Just wondering if anyone having the same treatment drugs as me which is Osimertinib and what are the size effects you are currently experiencing? thanks

  • Hi TinaB24 I am also incurable, and know what it is like to suffer with low mood. My life has changed completely since being diagnosed as incurable. I have had to stop working, I have lost a lot of friends, all of my confidence, and find it hard to accept how my body has changed physically. I went through a stage of grieving for my old life, and at times I still struggle, although I hide this well. Once I accepted my new way of life, and started looking for the positives in my life, it became easier. Now I take each day one day at a time. Today was not such a good day, I’ve not even managed to get dressed today, but I know tomorrow may be better. And the real good days when I am able to get out, see my family etc really make up for the bad days. X 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • Hi  good to hear you have started your treatment today. I am worried that your question about Osimertinib may go unnoticed in this thread, so it may be better to start a new thread yourself to ask this question. Just go to the top of the page and press the +New box, put Osimertinib as your title, then ask your question before posting x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • Thanks for your reply. It has taken me a little time to reach out to people. I am looking forward to chatting 

  • Hi thanks for your reply. I was matched with  osimertinib but I opted to go on a trial that was offered to me. This is a trial to compare Osimertinib with a new targeted therapy Lazertinib. It's a blind trial so I do not know which drug I am on. So far side effects are slight nausea , loose bowels and rash similar to acne on the face. I am sure there will be others who are taking the standard drug. Look forward to chatting

  • Thanks Chelle for your reply. That is how I am feeling right now that I am grieving for my old life. I am having to approach things differently. The family have been very supportive but the transition from normal to enevitable is a lonely journey and can only be understood by others who are in a similar situation so I am so glad that I am beggining to reach out to others. X

  • I am glad you have found us x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • Former Member
    Former Member in reply to TinaB24

    Thank you so much for your reply.  How long have you been on this trial drug if you don't mind me asking?

    Have you had your 4 weeks check up yet?  I am glad that the side effects on you is quite minimal.  Hope you will get on well with it and  help to control the illness.  Look forward to chat next time.   Take care