Today my husband heard he had terminal stage 4 lung cancer with MPE. We were expecting this and not surprised. Over the course of the last several days, his lung has been drained (nearly 3 litres of fluid). His chest drain was removed yesterday evening. He was deemed medically stable enough to be sent home despite copious fluid leaking. He’s now back in hospital. Now I have to wait another 48 hours before I can see him.
I am hugely disappointed that no one contacted me to discuss his discharge or ongoing care. His medication is inappropriate ie in tablet form. I managed to get that sorted for his antibiotics but not his pain relief and have to collect it from the GP.
Sorry folks - having a rant here. It is challenging enough without having to battle medical teams to find out what is going on.
Hi Rowan321, I am so sorry to hear that your husband has been given a terminal diagnoses. Please do not apologise, here is the best place to come and rant, if nothing else it makes you feel better to get your thoughts out.
I’m not sure if I am going to be much help, I just wanted to let you know you are not alone.
This whole covid situation is making things so much harder for people who have loved ones in hospital. It must be horrible, I can’t even begin to imagine what that is like. I pray today brings some better news for you. X
I feel so saddened for you and I understand when you.say it’s hard enough without battling with the medical team nearly 5 month now since diagnosis to loved one extensive SCLC and still receiving conflicting information to be honest neither of us no what’s actually going on with his body as he’s almost back to what he was before this awful diagnosis.yet when I ask professional should he not stop smoking I just hear silence a paus then kindness voice saying no let him enjoy I think do they know something I don’t so for now we try to live as he hasn’t got cancer but it’s incredibly hard I look at him and think what’s going to happen and how it’s so so sad I hope you receive better news but don’t allow the diagnosis to become part of who you both are if you can what I noticed is so many telling me how well I was doing they soon get board and suddenly you feel alone please try stay as strong as possible it’s hard I know but something changes inside you gain inner strength coping with something you didn’t ever imagine would come your way hugs to you both
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