Mum- Tagrisso Side Effects

FormerMember
FormerMember
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Hi all,

Mum was diagnosed in Feb 2021, stage 4 NSCLC with the EGFR protein.

She started Tagrisso in March and everything seemed to be going well. However, mum has since experienced 2 hospital admissions. She has suffered extensive bruising of the lung (due to treatment) and has had repeat infections.

Her first ‘routine scan’ ended up being via A and E and due to the bruising the consultant can’t see if the tumour has stayed the same. She was sent home with oxygen and has again been readmitted to hospital late last week. 

Mum had a 1 month break from Tagrisso between the admissions and managed to take 1 more pill before going back into hospital. The consultant has now taken mum off Tagrisso and chemotherapy options have been mentioned.

I would really like to hear from anyone who has had similar experiences on Tagrisso and if they have been overcome? We have heard really positive things about the drug but obviously do not want mum to suffer.

thank you all xx

  • Hi Rose,

    Sorry to hear that your mum is having issues with Tagrisso, there really seems to be a wide range of potential side effects that impact some more than others, I'm very fortunate that I've been on it for a year with little or no adverse events.

    TBH from my time on this forum I think that there are only a handful of users that take Tagrisso (given it is both relatively new and mutation specific), however you may be aware that there is also a specific EGFR+UK charity? Can I suggest that you also look to join their Facebook page. It is relatively small, informal, very friendly and above all is full of people who have had a range of treatment experiences including Tagrisso and challenges etc. I'm sure that someone on there will be able to help it terms of what your mum is going through and provide you with some guidance and re-assurance.

    All the best

    Steve