Hello
Has anyone suffered from peripheral neuropathy? Has anyone got any hints or tips to help reduce the affects.
Hi Hollsmolls
My pn was caused by Paraneoplastic Syndrome (PNS), which is a relatively rare autoimmune reaction to certain cancers. The neurological symptoms were the reason I why I went to the GP and led to the subsequent diagnosis of Small Cell Lung Cancer (SCLC). I was warned the chemo would probably make it worse, which it did! 9 years on I accept that my PN is permanent. I was offered various drugs but declined as they all tend to be anti-depressants. When the effects flare up e,g restless legs I take antihistamine tablets, which work for me. Also, you need to make sure that you do some walking during each day; with PN, the 'use it or lose it' theory applies. If you don't move on a regular basis you will find that the pn will worsen.
Hope this helps a little bit, but feel free to ask questions.
Kegsy x
Hi Hollsmolls. I do not have any personal experience with this, but my Mum did suffer with peripheral neuropathy in her feet after chemo, and I know how painful it was for her. My daughter would sit and massage her feet for her, which she did find helped a little. There is an information page about peripheral-neuropathy which may help.
Take care
Thank you
I am so hoping it will ease now I've had my last chemo. I have bought a foot massager and take amitriptyline from a previous nerve prob. Prob not helped that both my hands have had ulnar nerve decompression op so weakness was already there. And had a back op for a slipped disc on a nerve. So its probably attacking the previous weakness.
Thanks again
Hi Greenfield
Diagnosed August 2011 and finished treatment and of 2011. I have 6 monthly check ups and a CT scan every two years.
hope this helps.
Hi Greengirl
I never asked what 'stage' my cancer was. However when I asked how long I would have without treatment, I was told "just months". Everyone is different so predicting an 'end time' is not an exact science.
Best to focus on through the treatment plan.
I am very aware that we are hi-jacking Hollsmolls thread, so if you have any more questions please ask via my recent 'SCLC; 9 years post treatment' thread.
Kesgy x
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