Hi I went for a Chest XRay in March 2020, told by a doctor had a suspect lung cancer, I went for CT Scan, an Oncologist said I had got a tumour in my left lung, then went for a PET scan, I was told the tumour was not resectable by the Radiation oncologist, they were not doing a biopsy at that time, because of C virus, just before I was due to go for Radiation therapy, they put me in for a biopsy, that confirmed I had lung cancer Squamous, tumour size 3 to just over 4cm.Diagnosis was T2 N0 M0, so is stage 1b.
I went for the Radiation therapy for 4 weeks, 20 sessions, 2.75 Grays a session, making 55 Greys of radiation in all, finished the Radiation therapy in May, was told then that, I would have another CT scan in around three months, in the meantime I got mild Radiation Pnumontis was taking Ibuprofen to keep the inflamation down, I eventually reported it to the Lung nurses, because the CT Scan was due, the oncologist booked me a chest X-ray that confirmed I had Pnumontis, it also showed my tumour had reduced, they prescribed, a steroid, Prednisolone for the Pnumontis, I did not really want to take it, but after being told that if it did not work for me, I could stop taking it, I have been suffering from CPTSD for the last 18 months, which is from 40 years ago, it has been so bad that I had to stop working in April 2019, I never had any real mental health problems til then, I was referred to mental health in February 2019 to IAPT, still not seen anyone yet, after five assesments I decided to go to a private therapist been seeing her for a year that stopped in April due to C virus, after taking Prednisolone for five days, I had some kind of mental breakdown or fit, similar to a CPTSD emotional flashback but different, did something to my Amagdala and Hippercampus, still do not think I have recovered from that yet, and that was October 12th when I stoped taking Prednisolone, I went back to taking Ibuprofen it has worked well so far, I am taking it with Lansoprazole so the Ibuprofen does not damage my stomach too much.
To get to the point, I had my CT scan on the 17th of October 2020, the Radiation Oncologist rang me on the 19 December he said my tumour has broken down by over 50% of its original size, and told me he will make an appointment in three months time to ring me, I have not been put on any other medication, do I just wait for another three months, and then what happens?
I would appreciate anyone who has experience of what happens, next with non resectable NSCLC, when this is treated by Radiation only.
Hi BGJ and welcome to the group, although sorry you have found yourself here. I do not have the same lung cancer as you, but I too am inoperable, and I had radiotherapy. That is really good news to hear the radiotherapy has shrunk the tumour by 50%. It is also very encouraging that your oncologist doesn’t want to see you for 3 months. I’m sorry I can’t answer what happens next, as it might be a number of things. There are a few members here with NSCLC who will hopefully come along and tell you their experience.
Take care
Hi BGJ I too have lung cancer which is stage 4 I have just had 1 week of radiotherapy and was told yesterday that I’m starting chemotherapy and immunotherapy in a few weeks the radiotherapy for my c
e was to reduce like chellesimo said the fact he don’t want to see you for 3 months is a good thing keep hope
Then sayings are awesome 
