How I feel with my diagnosis of lung cancer

HI SIT 

im having pembrolizumab,pemetrexed and cisplatin   from tomorrow for 12 weeks every 3 weeks 

Hi Doc

So, that sounds similar to my own treatment, the chemo & immuno for 4 infusions and then just the immuno every three weeks thereafter although probably best to check the last bit with your own onc... Mine will go on for up to two years - hopefully... (hahaha)

Take a book,, wear comfy clothing and try to chill as much as poss - the thing about infusions is they take a while so really no point in being impatient (take your I-pad as well as most treatment centres have free wi-fi).

Also, wrap up warm and especially try to keep your hands warm as the canula normally goes in somewhere on either hand.

Apart from that your nurses should give you great advice for afterwards - I had a few side effects but mine was a different concoction. One of my biggest probs was constipation and to combat that I started to have a apple, an orange and a banana every evening and then a glass of Andrews just before bed. But once you get into it al,l come back and tell us how you're coping and I'm sure if need be, there will be plenty of advice for the inside track...

In the meantime, Merry Christmas &

Stay Strong

SiT

thank u for your support is always nice to talk to people with same stuff as many say .... that never happened when i was having treatment and such here everyone is nice and soo helpfull i will come share what is going on 

Good luck Donna - hope all goes well today and you can begin to get your head round it all.

Fi x

i started my first chemo and immune treatment the day was pretty good pints and pints of fluid and 5 bags of medication very strong  sickness drugs and a powerful steroids this is when it started i had been told to take the prescribed 4  one day before and in the morning before so after the treatment started  to go bad 4 hours in i began to feel dizzy so i asked them to check my blood sugar and they did i was 19 I'm usually after eating ect 12 ish i asked them to ask the doctor as i cant take any more meds as im on the top so id need to move to insulin the doctor said she is not over worried so i came home after being there over 7 hours i ate slept for a few hours woke up wide awake been peeing for England so i stayed up from 1230 at about 4 i returned to bed and have just woke up from a very nasty dream which i don't do so again must be the meds i feel dizzy i have taken my diabetes meds early gonna grab a slice of toast and try to chat to the doctor when they open and take bloods in a hour or so but i cant take them steroids at the moment they are treating me nasty i need my sugars to get back to a better level thanks for listening donc xx

thank u soo much x

Glad it went well Donna but can imagine it's tough for you working out your sugar levels. I can remember the steroids having an affect on me with sleeping. I hope it all settles for you soon,

Best wishes

Fi x

Oh Dear, you have a lot to contend with, with the diabetes as well. I hear people say they are having to take the “dreaded” steroids. Hope you are able to talk to your doctor about this, this morning.   Good news is that’s a big  ️for your first treatment. Once you get the chemo done you’ll find the immunotherapy a doddle on its own. 

I am sorry about your diagnosis  I too am falling to pieces with my diagnosis 

Hi Donna,

I have only just joined here and seen your post I am so sorry firstly that this is happening to you and your family.

Secondly I can 100% hand on heart say you are not letting your family down in the slightest. I am here as my mum is it your position and could have written your post. So in similar shoes of your son he definitely wouldn't want you to feel this way.

Also as truly heartbreaking as your situation is. It really upsets me that my mum hides how she is feeling to protect me. At 31 though I want to be there for her and we do need to break down and cry together at times as its so not fair. 

My mum isn't suitable to have it but we have heard amazing things of immuno therapy I hope it helps you have much more time with your family xx