Think everyone has left the building

Hi Ellie  I agree. the site is not the same , The lung chatty thread is very quite, , I think some are on holiday. hope you are all ok.  Ellen xx

Thanks Ellen did not know if the site was working, but glad some one is about.

As  i say the three groups i belong to are all the same.

Some thing is missing now from the site since the changeover, and i would say not for the better

I am doing good hope you are.

Take Care Ellie xx

I belong to multiple groups and this is the quietest I've seen the lung cancer group.

I'm finding getting disconnected so often incredibly frustrating and half the time I don't bother trying to log on again after the first few times.  It wouldn't surprise me if other people are fed up with it, too.

The thing which made Macmillan useful to me was it being one of the busier forums.  If it's no longer busy, it's less useful for me.

Hi all

must say I’ve stopped logging in so often as never seems to be much going on. I’ve joined a FB page forum And every day people chat on there. Just about their own experience but it’s helpful just knowing others going through similar things and a bit Of chat and humour.
There was a nice chatty few on the lung  chatty thread but nobody seems to bother any more. Gina was a fav but she’s back at work so probs.busy. There were several others though. I do think since the changes made to the site ppl have found it hard to navigate  and that’s put ppl off. What a pity as I’m sure many miss the support.

Hi Lolie

Your so right i spent many an hour here, between my groups and had wonderful support, but for the last month it has really gone done, hardly any one about as you say if they are having trouble then they will give up,

I have to log in  few times to.

Its a support group and by the upgrade they have changed that, i have been coming here for four and half years, it is such a huge loss to many that need the support and that is not what Macmillan is about.'

Ellie xx

Hi Nel107

Your right as well i have to say  i needed the support when first diagnosed and would have not got this far without it, i like to support others because u know what it is like at the start of this journey, and i miss the friends i had made on here, we had a good lot of banter.

The groups used to cheer me up  and kept me going,

Ellie xx

 

Well, well, well,

Who let you lot out

Good to see you’re all still around. I think what’s missing is the latest activity page, you could come on and it was all in front of you, conversations and questions, you could see straight away who was on and where they where. It’s just not the same and it’s such a shame, our lung chatty thread got us through some tough times and some happy times but it’s just not getting used now and I can’t work out why. Though it’s not only this group, I follow the awake thread and sometimes that can be on the second page of the breast group, how does that happen? The last activity on the incurables was 22hrs ago, something is very wrong.

Nothing much happened this end, my brother paid me a visit from Scotland last week and I have now finished my treatment, those 2 years went so quick. 

Maggie is still on holiday I think, Poppy has trouble getting on, no Gina and no Chelle and no cmtd

Hi Justme

Thought the site was broken, no one about, your right something has really gone wrong with this change, people are still lurking and still having problems trying to get on.

Glad you has a visit from your brother,

I know what you mean the two years fly bye then it is a wait and see game and still check ups never stops really.

I have just been busy sorting out hubbies garden painting all the garden fence, done six panels one one to go then some boards on our out house, it never stops, but took day of today as was weary getting to old for all this.

Hope others come back some will but others will give up.

Elliexx

I’m here. I struggle getting on here on my phone, so can only use iPad, and I’m just not as comfortable using iPad. My hands are very painful at the mo ( treatment related) and struggle holding iPad. Scan in the morning. Because my scan in April was cancelled, it’s now nearly 12 months since last scan. 

Good luck with your scan.