SCLC: 8.5 years post treatment

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Hi

I haven't done an up date since this time last year, so thought it was about time for another one. Had my 6 month check up today at The Christie and the good news is that there is still no sign of the SCLC returning even though it is 8 and a half years since I finished my treatment. I am also fast approaching the 9 years post diagnosis anniversary.. 

As I always say in these updates, the fact that I have got this far has very little to do with me but everything to do with the wonderful NHS. Initially my GP who listened  and immediately took action when I rolled up convinced something serious was going on, secondly the local hospital who did all the initial groundwork such as x-rays, scans, bronchoscopy, biopsy etc, and last but never least the ever wonderful The Christie hospital and all the amazing cancer specialists.

I only post these updates to give hope to those who are recently diagnosed or are going through the quite often brutal treatment.  An SCLC diagnosis is no longer the automatic death sentence it once was, and many more of us are surviving all types of lung cancer. E

I hope this provides  some help to anyone who is starting their lung cancer journey; I wish you all the best possible outcomes.

Kegsy x

  • hi Kegsy


    Thank you so much for the update, it has given me hope and inspiration 

    What grade was your cancer and what treatment did you have? 

    I am so amazed and I wish you continual good health 

    Thanks for sharing

    “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning”  (Albert Einstein)

    If you can’t fly, run, if you can’t run, walk, if you can’t walk, crawl: but by all means keep moving (Martin Luther King) 

    Marie1964
  • Hi Marie

    I was never told the Stage; all I needed to know was that it was extensive across the left lung but was 'limited' i.e. it had not spread beyond the one lung even though it had also completely blocked the entrance to that lung.

    My treatment was 'old school; 4 cycles of chemo (a combination of Cisplatin & Etoposide alongside 33 days of high dose radiotherapy.

    Does this help?

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • Hi Kegsy

    Everything you have said helps - I had initially stage 1, then within seven months, stage 4- don’t want to know about life span prognosis, I believe in living and that’s all I need to know. I am having immunotherapy at the moment and the first scan described it as stable - I will take thatGrinning

    Thank you soooo much for sharing, I’m still smiling.GrinningThumbsup

    take care - your an inspiration 

    “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning “ (Albert Einstein)

    if you can’t fly, run, if you can’t run, walk, if you can’t walk, crawl; but by all means keep moving(Martin Luther King)

    Marie1964
  • FormerMember
    FormerMember in reply to marie1964

    I love your positivity that is exactly how I am too, I was diagnosed with terminal lung cancer in January and have had 5 lots of Chemotherapy,The last 2 were only immunotherapy but the results have been amazing, I have significant reduction and no new growth anywhere..I didn't want to know about time left and felt I would focus on that.. I live every day and make it count, The main issue for me has not being able to have treatment for 3 months due to the immunotherapy attacking my liver/kidneys, both have had time to recover and I had chemo 2 weeks ago.. Remaining positive is key to dealing with Cancer.

  • To Marie and Rainbow

    What amazing and positive people you both are! Yes, remaining positive is key.

    To be honest when I was going through the treatment. I would have gnawed off my own arm for a promise of an extra 12 months so getting this far is unbelievable. That said  there are only two occasions where I now focus on my cancer   1. when I am on here and having to dig deep to recount my experiences of SCLS   2. when I go for my check up. I am very calm to go for pre-check up scans and when I go to the check-ups; my squeaky bottom moment always happens when I am shown into one of the Consulting Rooms to await the Dr!

    Any reduction in growth is fabulous and 'stable' is great (means no sign of any active cancer)! 

    Long may your treatments bring positive results and I wish you both the best possible outcomes.

    Kegsy xx

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011