Immunotherapy

Hi , 

while you are waiting for some of the wonderful people from this group to reply I wondered if you had noticed an earlier post where quite a few people have said they are on Pembrolizumab. Click on the link and it will take you there.

https://community.macmillan.org.uk/cancer_types/lung-cancer/f/lung-cancer-forum/199217/immotheraphy?Page=0#1453240

(it’s the drug I’ve been on but I have it for melanoma)

best wishes.

Thank you!

Hi Debs

Not been in your situation, but i did have Pembrolizumab, for two years with good results

Ellie xx

Hi Ellie

How were the side effects? I got a factsheet from the oncologist and the side effects sound scary!

Hi  Debs0768

I was lucky and did not have to many, hopefully you will be the same.

Of course a bit more fatigue but i had that with chemo.

Went of my food, so made sure i ate even if i did not fill like it. Had slight trouble with thyroid, but it settled down. The worst one for me was itching so bad i bleed, even through the night i was scratching., and my arms where terrible but i got cram and that really helped.

Some side effects could be really nasty, so just watch if you do not fill right, the unit where you have your entrapment, will advise you Keep eye on temperature.

You will be fine i am sure, it does not always work for everyone  a bit like chemo, it was easier than chemo for me.

Ask if you want to know more.

At one point i had trouble swallowing, but that also settled down, this occurred after i had had a few treatments  

Take Care Ellie xx

Hi Debs

I had 2 years of pembro.  My only side effect was fatigue.  My tumours shrunk whilst I was on it and I became stable.  I finished it in January 2019 and at my last scan February 2020 I was still stable.

Good luck.x

Hi mummyb

That sounds really positive. Day 3 after first treatment and I feel fine, so fingers crossed!

Hi mummyb,

I have just read your profile and I’m so pleased the Pembrolizumab has been so successful for you! That is so encouraging. I have been given 2 clinical trial paperwork to read & mull over to make my decision. Looking at the Pembrolizumab combined with ICOS really put me off due to the nasty side effects but your experience of it and outcome has made me think again! I know not everyone responds the same way to treatment but I think I’m being swayed towards that now.

Thank you and well done you!

little-fi