My partners care

FormerMember
FormerMember
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My partner was diagnosed with lung cancer this time last year and had a partial lobectomy. She was diagnosed with adenocarcinoma's of the brain just a few days ago after suffering some weakness and other symptoms.

She is not very strong and has lost some weight, she is currently in hospital and just to complicate matters we are expats living in Italy.

I understand that her time is limited and I am still going through the anger and upset of knowing she will not be part of my life within a few years or months.

Can any of you guys offer any advice about her care when she comes home? I have always considered myself strong and capable but I worry I might just get things wrong, I know it's a horses for courses syndrome here but any advice would be very welcome.

Also, I feel utterly destroyed by this, as if I cannot bear losing my girl and I am very worried I will fail her in some way let her down, I'm weeping as I am typing this cursing at myself inside to 'man up' but this kind of pre-death grief is something I had never considered. Her diagnosis was three days ago.

  • Mccmcc

    treatments are amazing these days so please just give the team who will care for her a chance to put a treatment plan in place and deal with it a day at a time 

  • FormerMember
    FormerMember

    Hello mccmcc

    I am sorry to hear that your partner's cancer has spread. It's an awful blow to hear that. It will take sometime to process. 

    I hope she is being taken care of and I am sorry to hear you are not at home. Do you have other family or friends there with you both?

    Have they mentioned if they may offer any further treatment in Italy for her?

    It is completely understandable how you are feeling right now and there is no reason to tell yourself to 'man up' It is perfectly normal to feel how you are and please do not feel you shouldn't be feeling as you are right now.

    It depends on how many brain mets she has, how big they are, how many she has and where in the brain there are. There is various types of radiotherapy that may be effective and some chemotherapy can get through the blood/brain barrier too. 

    I would suggest see what Italy says and maybe call the helpline here too between 8am - 8pm freephone on 0808 808 00 00 to get what may or may not be offered in England. They are still in quite a strict lockdown right now, so things may be altered slightly. 

    You will never fail her, no matter what, just be the same support and partner you have always been... cry together, laugh together, do what is usual for you both.

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you both for the kind replies, ironically after my post the hospital called and it seems she is on very short time, they are also worried she is not eating and very weak. She is seeing the oncologist Tuesday but of course I won't be there and it seems she has now lost the ability to use her phone so no Comms yesterday at all.

    I'm bracing for the worst but would love to get her home just for a few selfish weeks of her time for me.

    Ginajsy:

    I read your profile and the old waterworks came on again, I'll think of you too...

  • FormerMember
    FormerMember in reply to nel107

    I seriously need to stop reading peoples profiles, you too started me off!

  • FormerMember
    FormerMember in reply to FormerMember

    Dear mccmcc

    I am so sorry to hear that Disappointed

    Are the hospital going to give you regular updates or can you also be updated by the oncologist?

    It must be so hard that you cannot communicate directly with her. I know when I was having treatment etc I went very very quiet on people. People kept trying to keep in touch but the energy it took to read and reply was a bit much for me. Hoping she has a better day and can reply to you today.

    Not selfish at all, we all want as much time as possible and I wish that you get that too.

    Sorry about my profile, it isn't intended to make people upset. 

    Please keep in touch with us the hospital and most importantly your partner. Even though she may not reply, she may still be able to read them or get a nurse to read them to her and I am sure she will find it heart warming to know you are thinking of her.

  • FormerMember
    FormerMember in reply to FormerMember

    Don't change that profile!

    I'm sending her text messages of bland news and hoping she is reading them, if not she's very sleepy at the moment and obviously things may be going on inside her head too..

    Again many thanks