Immotheraphy

FormerMember
FormerMember
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I would like to hear from people who have gone on to imotheraphy, I can not make my mind up what to do.

  • FormerMember
    FormerMember

    Hi Billybags

    Welcome to us. This question gets asked usually once a week. So I have done a search and if you click on the green writing it will that you there to where all the threads that mention immunotherapy.

    There are many of us here on it and doing really well.

    It's a decision you must of course make yourself. You can ask your oncologist's opinion and if you could have further chemotherapy after immunotherapy too.

    Good luck with your decision.

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Ginajsy, I will do that. I’ve made my mind up, there is not much choice, have it or not. I’m must say I’m not looking forward to going through all through s**t again but I must give it ago. I’m going to the threads now

  • FormerMember
    FormerMember in reply to FormerMember

    Hi, I’m on immunotherapy and have been since September.  It’s doing it’s job with very little side effects.  

  • FormerMember
    FormerMember in reply to FormerMember

    Hi, Dance in the Rain, what a lovely name you have given your self.  Thanks for answering my post. It’s nice to know you have very little side effects.There going to put me on Atezoltzum, and I should start it in two weeks time. How often do you get the treatment? My oncologist said it would be every three weeks. Is it as bad as chemo?  I would love to know more details about what you are going through.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi,

    Thanks - always liked the expression and thought it very apt! 
    I am on a different immunotherapy drug can’t remember how to spell it and I’m writing this in bed and can’t be bothered to get up and find it out but it begins with P!!   Anyway, I started it alongside two lots of chemo every 3 weeks for 4 cycles then the carbotlin (sp again I know!) then scanned all stable then since then been on immunotherapy and maintenance chemo last scan early March all stable.  Due to covid 19 they have now dropped the chemo and my last treatment 3 weeks ago was the first time it was just immunotherapy so up till then I didn’t know what effects were chemo and what immunotherapy!  Anyway I can say all effects were all chemo! I have felt great! Because I am now just on this immunotherapy they can double dose me too so it’s now every 6 weeks as opposed to every 3 weeks.  So as long as it’s doing it’s job at keeping me stable without the chemo I’m very happy.  So, to wrap this up ...... no it’s no where near as bad as chemo! X

  • FormerMember
    FormerMember in reply to FormerMember

    is it Pembrolizumab? (Butting in trying to be helpful)

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you! Yes that’s the one! X

  • FormerMember
    FormerMember

    Hi, I have been on pembrolizimab (not sure if that is the correct spelling) for 3 months now. No side effects at all. Currently halted for a few weeks for radiotherapy then all being well I will be back on it. Hope that helps. 

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for that, sounds like a right cocktail of stuff you’ve been going through. You have made me feel a lot better about immu. I I’ll see how I go. Take care.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi. Gsd Rule,  It does help, I’ve just been dreading the side effects.mind I was lucky, I didn’t lose my hair when I was on chemo. I told my oncologist I’d better not lose my hair on this immu he laughed and said I wouldn’t. Take care.