Just diagnosed lung cancer

Hi Debbie

Welcome to the group, though sorry you have had to join.

We where all new once and know how you are feeling.

Until you get all the results its a very hard question and we are not qualified to answer that.

You will get a plan put in place and everyone say's they fill a bit better when they know what path they are on.

There are so many different chemo's if that is the plan of action, there is radiotherapy and also surgery.

You will not know to all tests are in and the team then decide.

There is new drugs coming out all the time, when you know what plan you have some one will always be here to answer any questions you might have and you will have loads.

This is a very friendly group and support each other when and if we can.

Its a scary time and the mind goes into overdrive we have all been there, i was diagnosed nearly four years as incurable but have been on treatment

I was diagnosed nearly four years ago and have been on treatment.., though different types.

Take Care Elliexx

" .You Never Walk A Lone"

Thank you x 

hi debbie  sorry you have found yourself here. when i was first diagnosed it was 9cm  i didnt know what that meant. after chemo it was shrunk to 2cm.  my first treatment was 3 yr ago.  sill here. would not be normal if you were not scarred. we  go through a lot of swings and roundabouts on this joinery but treatment is getting better and we are getting longer lifespans.   TC

Hi Debbie, sorry you find yourself here. I was diagnosed 6 weeks ago and know exactly how you feel. I posted here at the time and got lots of help and encouragement from the existing members who assured me that once I’d had my bronchoscopy and a treatment plan, I would feel better and would have a clearer idea of what I was facing. And they were right!  I’m approaching my third chemo/immunotherapy cycle, I’m beginning to come to terms with my diagnosis and best of all my cancer isn’t the first thing I think about when I wake up. Good luck with everything. 

Anna

Hi Debbie, welcome to our group, but sorry you find yourself here. You have had some good advice already, just wanted to add that everything you are feeling at the moment is normal. I remember that gut wrenching panic when I was first told, and I thought my life was over. I was told from the beginning I was incureable but treatable. 5 years on and I’m stable and leading what I call a “new normal” life. Good luck with everything, lots of people here for support. 

Hi Debbie, I'm fairly new to this myself but the people on this site are the best, they all know how we feel having all been in the same boat. I have found it reassuring to see so many on it for such a long time. Its all very frustrating and frightening but I think I can speak for us all, we are all here to support you. Stay strong! Xx

Hi Debbie

Welcome to us, sorry about your diagnosis.

Try not to fret to much just yet. You will likely have to go for many more scans and tests which is frustrating but they need this to give you the correct treatment plan. This usually includes a CT, PET and biopsy. Maybe blood and breathing tests etc.

I would imagine one solid tumour would suggest you are more likely to have Non small cell lung cancer. But obviously I am not medical, nor do I know more about your personal case than what you have written here.

When they biopsy, they will also test for mutations/markers and grade your cancer from what it looks like under the microscope. All of these things will open up doors to which treatments you can be offered. Treatment is coming on leaps and bounds lately. Many of us have been knocking about for quite sometime now, so do not panic.

Please do not go in search of statistics on survival rates. By it's nature this is old data collected over years before new treatment's became available. The patient's of today will show a massive improvement I am sure, to the statistics available from a few years ago.

Keep talking to and asking questions, we will do our best to help.

By the time my tumour was removed it was 9.5cm, by some miracle I had no lymph node spread even though pet scan suggested otherwise and had to have them biopsied before they decided on treatment and the nodes they took with the tumour came back clear. I'm just half way through adjuvant chemotherapy, not enjoying it but if it mops up any stray cells it's worth it. I count myself as very lucky especially knowing what a lot of people have to endure but also maybe I can give a bit of hope at the same time..

The waiting seems to take forever and is certainly the worst part but try to stay positive, the guys on here are fabulous should you need to chat. 

Good luck and take care xxx

Thank you for your reply, it really does give me hope. You are absolutely right, everyone on here are just the best. It really helps hearing other people's stories and getting positive vibes from them. Excellent news your lymph nodes were clear, fingers crossed its just another wee hurdle for me to jump. I hope the rest of your treatment continues to be successful, as gruelling as it is. Take very good care of your self. X

Hi Ellie 68 l have only posted once on here , l to have small cell lung cancer that has obstructed my super vena cava , had 4 cycles of chemo and my tumour has shrunk by 90 percent fingers crossed , it’s in 3 lympnodes and my chest , it’s so good and makes you feel positive hearing that you have managed 4 years well done it couldn’t have been easy at times , it gives me hope wendy