My mum has small cell lung diagnosis with secondry liver

FormerMember
FormerMember
  • 13 replies
  • 106 subscribers
  • 6292 views

Hi I am looking to gather as much information as I can on symptoms, what to expect and what the deterioration signs may be and how I can help my mum with her diagnosis. X

  • Hi

    So very sorry that you have cause to be on here.

    The one constant with both cancer and the treatment is that everyone reacts differently and everyone's  symptoms, side effects and outcomes will differ.  

    It would help us to help you if you could provide more info;  When was your Mum diagnosed with SCLC? If recently has she been given a treatment plan? 

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • FormerMember
    FormerMember in reply to Kegsy

    Morning, she was diagnosed in September, and offered palliative chemotherapy which she has declined due to the side affects and the overall outcome.

  • Hi

    So very sorry. Given your Mum's circumstance, can I suggest that perhaps you may find more relevant support and advice in the 'Supporting Someone with Incurable Cancer' group? 

    Through everything you are facing, please ensure that you look after yourself too.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • FormerMember
    FormerMember in reply to Kegsy

    Thank you, for ur replys were will I find this group please. X

  • Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to FormerMember

    Hi ,

    I was diagnosed with small cell lung cancer which had spread to my liver, pancreas and spine in August and from my experience the palliative chemotherapy I received dramatically reduced the symptoms I had with only a few side effects. I too was in two minds in the beginning about the side effects and overall outcome. But now I have no real regrets about the decision I took.

    Hope this helps.

    BoB

  • FormerMember
    FormerMember in reply to FormerMember

    Sorry about ur diagnosis, mum has chosen not to and is experiencing some symptoms alot I am unaware of what's the cancer and what isnt and also what to expect and how fast the deterioration can happen she was give 6 months prognosis x

  • Hi

    Highlander has kindly provided a link to the other group; see above.

    I hope you find the support and advice you need. Also don't hesitate to contact Mum's medical team if you need to check out any new symptoms.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • FormerMember
    FormerMember

    Hi Sazp

    I am sorry to hear about your Mum's diagnosis. I hope you are also receiving support for you too, either from Cancer support places or via your GP.

    I can understand your Mum not wanting the chemotherapy and that you are supporting that decision. Everybody is different and each person's individual wishes are the important part.

    I know she does not want chemotherapy but I hope she will still see her oncologist and hopefully she has been designated a lung cancer nurse, or put in touch with a hospice too to help support you all?

    I see you have been told a prognosis, however please note that this is based on a best guess. Everbody is different and their health and needs before diagnosis, can affect the estimate. I hear of so many people that have been told a very short time, and they are here a long time after, though the other side of the coin also happens too.

    It is good that you are researching this and preparing in how best to support. Often it depends where the Cancer spreads to,  as to what are signs of deteriation. Lung Cancer usual places of spread are the Chest wall, ribs, spine, Liver and Brain. Maybe look in those groups too or fact sheets.

    I would make note of any new symptoms and report them to her team. It could be increase of pain, nausea, cognitive function, breathlessness, so many things. So just ensure anything new is passed on to her team and hopefully they can prescribe medications to minimise the effects.

    I do hope that helps a little, keep posting here too if you are worried. We are not medical but someone can point you in the right direction too.

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you for ur reply, so far it has spread to her liver that we know of and is starting to affect her liver function something to do with her enzyme level. She has been passed to Macmillan for palliative care now so we just see the nurse and a district nurse some weeks. She has good days then really bad with confusion, swelling, bad sweats, pain and sickness and bleeding nose it's hard to know if these are all normal and when to be worried x