Hi everyone,
I am 62 years old and in June 2018 I was diagnosed with stage 4 lung cancer after complaining of a persistant cough and breathlessness, and was on a course of Chemo which finished in September 2018. I then had regular CT scans every three months to monitor my right hand lung. Each time my oncologist said 'no change' which was fine by me as I felt well - just like my old self. My last CT scan showed that the cancer may have spread to my spine so was given a PET scan. Unfortunately the PET scan results last week, have confirmed that my lung cancer has spread to my spine, left hip and lymph node. I live in Guernsey where unfortunately immunotherapy is not available, so will be starting chemo again very shortly.
What I find hard to believe is that I feel ok - to the extent that I still play badminton to a reasonable club standard, and I have no pain and a good appetite. I am told that my life expectancy is short - so is it possible to go from feeling fine to death's door really really quickly?
I am hugely grateful that I can still have an active enjoyable life, but am very very worried about what might be just round the corner.
Hi David F
Sorry to read about your recent PET scan results. I am really surprised that immunotherapy is not offered in Guernsey, have they told you this? I am from the better island Jersey and we have it over here.
It is good that you are still active and not suffering pain. Enjoy every minute is my advise. Often they are wrong on time scales and because of this I have not asked for mine. I just focus on good days. I also am in contact with our hospice which has helped me in everyway. Have you been referred to yours?
I know what you mean about around the corner but with the right support ready to go whenever it may be needed helps a little.
Hi Gina,
Thanks for your reply, really good of you to take the time.
I've just read your story, gosh what a terrible time you've had, you really do have my very best wishes for better times ahead.
It is definite that immunotherapy is not available in Guernsey there has recently been debates in the States about following NICE guidelines but it fell through. I looked into the possibility of getting onto a immunotherapy clinical trial in Southampton. It may have been an option but it entailed flying over at least every three weeks (sometimes more) for at least 2 years all at my own expense. After a great deal of thought I decided to go with the chemo option again.
We do have a good hospice here and I hadn't thought of contacting them. Maybe I will, but for some reason feel reluctant - as I still feel ok, I'm sure further down the line I will.
I'm going for a meal out tonight with some friends, so as you say I'll put my worries on the back burner and enjoy the good times whilst I can.
Best Wishes
Dave (from Guernsey)
The sunniest island
Thank you also to everybody else who has responded.
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