Lung Chatty Thread

I know! I am the cloud of doom!

It wouldn't let me upload a new one, so genius thought, of if I remove the old one it would let me.... well thinking didn't work

I have asked them really nicely if they would put a new profile picture up for me but it will likely be Monday.

Opsy!

Strange isn’t it, can take one off but can’t get one on

o dear gina,you will miss the beauty contest julie has set up.

I am sure I am the clear winner :D I do think you need something other than a boot Darlo!

Right now I am winning and getting the washing in the machine. Opsy, what happens when you leave it.

I have just raided the cupboards as steroid munchies are so bad! EVERYTHING smells delicious all the time..... you will probably get me talking about food a lot for a while.

Humphrey - we will of course ensure a meet up done south is organised for who ever. No need to wait for me!

I think they are talking about potentially next week for surgery! I know I was amazed. I should hear from him, I was hoping Friday but looks like it will be Monday. I would have to go meet him and etc and then either stay there or get it done. Not sure which.

I will also need to know how much time they give you to heal after surgery if radiotherapy. So I may be over twice, really not sure yet.

But perhaps someone who knows London way better than me (never been there - except on the tube or similar) would be the better to organise when and where.

I would like to see people, but obviously won't know how well I will be feeling etc. They did warn me if I do have full brain radiotherapy I will loose my hair. So if you loose me I will be the bald one eating everything in site.

Wow they really are moving fast Gina. I’m trying to keep up with the posts but just able to grab a couple of minutes here and there. So you will have operation in London ? Xx 

Get a cuppa and rest, not too much Chelle

From what my Jersey oncologist seem to say Friday yes. She had sent the scans to UCLH neuro surgeon and he seemed to think they were operable and getting the impression they want them out. Partly I think my health insurance doesn't cover me for Southampton (it's not registered with them - not sure why) but the guy at UCLH is. So I think they are going for speed and covered cost as Jersey has to reimburse the hospital for anything uncovered I have over there I think. I'd prefer Southampton, but take what I can get. So I reckon ill be flown over say Wednesday to meet and consent.

I had a look on the map and it looks like it's just across from Westminster.

I know we only fly to Gatwick so I would imagine if so I will be flown there. That or the further away ones which wouldn't be that good. We don't have direct flights to Heathrow.

That’s better Darlo

Hi Gina

The hospital is near Tottenham Court Road tube station, which is also close to Euston station. My partner is a Londoner and Will happily plan you a route if needed.  He knows London like the back of his hand, but I’m not so knowledgeable. I do know that UCLH is closer to Camden, but not near Westminster. 

Hope you can fly into Gatwick, it will certainly make it easier for you. Such a pain you can’t get it done in Southampton where you are used too, but understand now why. 

Oh dear Chelle

See, I really do not know my way around London at all! Hoping Jersey will tell me where to go or similar.

Thank you that is kind.

Yes, it's all about money hey. Though I feel rubbish at the moment, so hoping for the speed. I spent sunday morning sprinting to throw up again and slept all day yesterday. The quicker they sort something the better I will be skinny at this rate mind.

hi gina sorry to hear your having such a rubbish time. not going to work are you.?   take care.