Twin’s cancer

Apologies I missed out a part! He was told quiet early on that they would be putting him on the new immunotherapy but has now been told that’s on hold. 

Hi Ambs72

I am sorry to see that you found yourself here. He should have been given the results from his scan to say whether there was shrinkage of the tumour and or if any effected lymph nodes had shrunk also. May be he wasn't taking it all in in the meeting? Or as they were discussing his spine perhaps as often these things happen the meeting goes off on a different tangent to what we thought would be expected.

He should have been assigned a lung cancer nurse specialist. If so I would recommend he gets in touch with her and she should be able to tell him about how the treatment worked for him. She is what I call your lung cancer PA, she chases people, organises and coordinates the team and liaises with the patient. She should also tell you what the next steps are for investigating the lesion on his spine.

With regard to the new immunotherapy, it may be that they are holding off until the have investigated the spine. This often happens as they want to ensure that the best treatment plan is used for the person. Once they know if the lesion is anything to do with the cancer or not, then they may alter the next step and put him on a new treatment.

Please do not be afraid to ask questions of his team or if you feel you are missing information do let them know. 

I hope this helps a little.

Hi thank you so much for your kind response and advice x