I have never had alectinib, but I looked it up on the manufacturers ( Alecensa ) site and it is a ALK inhibitor and has got a pretty scary list of side effects. Look on the site for yourself. Did your oncologist not go through the side effects with you?
I know that if there are any people on here that are on this treatment they will give you their experience.
If they are giving you Alectinib you have likely been told your cancer is ALK+? My mum has this type of cancer but she was diagnosed before Alectinib was approved in the U.K. so has been on different medications.
Most people with this type of cancer will start on Alectinib now and I know of several Please have a look at the below website which has been set up by some UK ALK+ patients and carers.
I take 8 x Alectinib 150 mg capsules daily and have been for 18 months since being diagnosed with Stage 4 Lung cancer. The only side effects I have noticed are fatigue, some skin irritation and occasional minor constipation. I have more problems with humidity and hot weather but the medication has kept the rather alarming cancer in spinal cord ( for which I had an operation in March 2018), sternum and lungs at bay and stable which is about the best I can hope for.
have just read your post and have recently been diagnosed with stage 4 lung cancer. I had radiotherapy to spine and now started on Alectinib.
I am finding the constipation hard going (excuse the pun !!) I always try to keep my diet healthy but its getting more difficult. Can I ask how you deal with side effects of Alectinib and how you are in general now.
I have been taking Alectinib for over a year and yes the constipation is bad. I take large doses of milk of magnesia every other day and so that does the trick!
Hi, I’m on alectinib...constipation has been manageable of sorts, although right now it doesn’t seem like that. I’ll definitely give milk of magnesium a go, thanks for the advice
