Lung cancer have spread to neck lymph glands

JuliaMay.....Try to be calm until all the results are in.  Sometimes things aren't as bleak as they seem.  Let us know when you have the test results.  There will be many here to stay by your side.  A positive attitude is a must.  Oh and whatever you do stay away from Google.

Nan

These are anxious times so try not to panic which is easier said than done. If you or your husband are worried talk to someone about it, don't bottle things up.  Your GP of nurse specialist will be able to help you. 

 It maybe worth doing some research over treatment options before your husband gets his test results. I found becoming informed really empowering.  Write lists of questions you want to ask you the specialists

Good luck and I hope it turns out well for your husband 

hi, my partner has currently got lung cancer, he was diagnosed with stage 3 april this year, his lung cancer has spread to the lymph nodes in the centre of the chest, he was told it will most likely be life long control (hes only 27 so very young to have this illness) but because he reacted so well to chemotherapy we were then told that we were looking at remission, 4 weeks of grueling radiotherapy later, we are waiting for the radiation to leave hes body & hopefully will be in remission early next year, try to stay positive, i know how hard it can be. the not knowing is the worst xx

Hi JuliaMay, 

Sorry to read about your situation.

I agree with Olivia15 and trying to be informed can be very helpful coming to terms with what you are facing. How you do that is your personal choice and being able to ask the right questions of clinicians can be very helpful. There is no one source for information and all the most reputable  organisations, including Macmillan, can be found on 'google'. 

Every person, including myself, that suffers this diagnosis has a different experience so please try not to assume the worst. Different people respond differently to the same treatment and other treatments are sometimes available depending on circumstances. New treatments are increasingly becoming available right now so your future is anything but certain and I personally can vouch for a better prognosis than I was given; told less than 18 months and inoperable by lead surgeon and still here nearly 4 years on after 3 operations and a few complications.

Source your information carefully and with an open mind, be prepared for appointments with notes/questions and do anything you can that puts you in a better place to cope. You both might feel different from one moment to the next, day to day or week to week, etc, so don't make any hard and fast rules and try to live in the moment as positively as you feel able. Focus on each other and the people and things you love, the rest will take care of itself in the same way it always does. 

Wishing you the best possible in the future.

That is so positive, thankyou Ronnie. I know my husband is quietly thinking " well, this the end " and he is much more worried about me than himself. Kind of hard when both of us are in tears at times! It has been good to read the replies on this forum, and I read many of them to my dear husband, as he is not good with IT.

I wish you the very best and thank you again .

Hi,

My lung cancer is also in my lymph glands and I am definitely not palliative but classed as incurable/terminal but controllable.  I do not know how advanced your husband is but I intend to be around for a long time.  Keep the faith!! Love and hugs ((((XXX))))

Alison x

Try to stay positive I also have lung Cancer which has spread to my lymph glands and I look at mine as a long term illness, I am Stage 4 Cancer...after waiting for biopsy results which seemed to be an enternity I was informed that I have an EGFR gene which means I can go on the new Biological tablet which is a treatment for NSCLC which has spread outside the lung or to other parts of the body I've been on the tablets for 7 months lot of people have been on them for years nobody can give us a date when we are going to die and they are bringing out New Treatments all the time. Do some research yourself...there's also a very good American site called Team Inspire lots of people from England in the group they have a great deal of information.

Take Care

Shirley

Thankyou for this, it is good to know; yes, time does stretch out so much when you're waiting for results.

I'll look at the American website, it is very useful to have websites reccommended, as Googling  gives almost too much information and I've stopped doung it.

My good wishes and kindest thoughts to you x

Hi Shirley

Is the biological tablet called Afatinib?

I am about to start taking it. If that's it, what'sa your experience been of it?

Hope you are doing OK

Alex

Hi Alexds

Welcome to the group but sorry you find yourself here. 

This particular post has not been active since 2016  and it maybe that these members are not around or might not be active on this site at the moment.

There will be members in this group with experience of Afatinib, and you might be better starting your own thread asking for anyone’s experience. Wishing you all the best.