Lung cancer

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Had to stop immunotherapy because breathing bad was a side effect after a few months doing well was on steroids got better quickly but after coming if them within a few days I was struggling again with coughing and breathing now waiting for scan back on steroids and feeling better but feeling sick my lungs sound very noisy scared now as waiting for scans can anyone say if they have had similar problems to help me not to be so worried.  

  • Hi

    Sorry to hear you have been having problems with treatment.  I have no experience of immunotherapy or steroid treatment, my lung cancer was treated with radiotherapy alone.  I'm sure someone who has experienced side effects on immunotherapy will reply to help with your query.

    Best wishes.

    Ann

    • My husband had horrid side effects after only one round of immunotherapy. He got a nasty cough and it turned out to be Pneumonitis a recognised side effect of immunotherapy. He was put on steroids and relived it wasn’t another tumour. He is fine now. 
  • Hi thank was he able to go back on treatment I am on second dose of steroids as soon as I finished it all came back the awful cough and breathing just hoping I will be ok not sure what will happen next 

  • No he didn’t go back on immunotherapy as his immune system was overloaded and the oncologist said he didn’t need any more.

    it did make him very ill for a few weeks and he was diagnosed with pneumonia and so was put on antibiotics. He slept a great deal. The oncologist observed his blood tests every week. 
    Now he is on once a month monitoring and is gardening and playing golf. He still tries to sleep during the day for an hour. 

  • Thank you that does sound so positive it helps me to know I will soon improve