Update on hubbys treatment

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My hubbys scans have shown a considerable amount of shrinkage in the lung (primary) 71mm to 29mm also further shrinkage on 2 bone mets & brain cyberknife clear of any cancer & no new cancer anywhere in the body.

He as been having kidney function probs & delays with premextred maintenance.

Today he had premextred & onco as changed from Zometa to Denosumab & also requested a PET scan to see about radiotherapy consolidation to the 29mm lung mass.

I'm presumimg this is all positive news, as I'm not sure what consolidation radiotherapy means & if anyone else as had it?

And I presume Denosumab is the same as Zometa, but not as harsh on the kidneys?

I couldnt go with hubby today, as I'm still unwell & I normally ask all the questions, hence my post to see if anyone else is/as had this treatment?

As anyone had side effects with denosumab & is it better than zometa?

Hubby still asymptomatic of lung cancer stage 4, eating well gained weight & we're away in 3 wks to see friends in Fuerteventura, onco is ok with this.

TIA Teresa x

  • Such very good news for your husband, and gaining weight is a good sign things are going well. Consolidated radiotherapy is targeted radiotherapy to kill the remaining cancer cells in the lung.  I had radiotherapy on a 2.5cm lesion on my left lung in November-December 2023 with no other treatment, and subsequent follow ups shows it did the trick.

    Have a lovely holiday with your friends, and best wishes to you and your husband.

    Ann

  • Hi Ann. Thank you for answering. After every clinic oncologist does a letter for GP. But trying to understand some things written, as abbreviated medical termology is used. So presume the PET scan is needed to see whats active cells in the lung, as CT only shows lung lesion, but not whats active? 

    I have Googled, but conflicting answers, so normally on here somebody will know as they have been though it, like yourself.so good to hear you didnt need no other treatment.

    When my hubby was first diagnosed he lost over 3 stone, mostly not eating due to shock & anxiety. Although he'll never come to terms with diagnosis & its on his mind 24/7, his appetites normal. Like most with cancer scan time is awful " scanxiety" I read on here.

    We are both looking forward to getting away & seeing our friends!

    Can I ask, on your 2.5cm lesion how many radiotherapy sessions were needed?

    Thanks

    Teresa

  • Thanks for your reply.  Regarding medical abbreviations, I was a medical secretary for over 25 years (now retired) and know a fairly extensive range of abbreviations, although my field was gynaecology, endocrinology and gastroenterology. 

    Regarding my treatment, I had eight sessions spread over two and a half weeks, it was every other day.  It was the targeted SABR radiotherapy, this is only performed on lesions/tumours measuring 3cm or less.  My first follow up CT scan with contrast showed a 50% reduction in size, with the 2nd yet more reduction, and with the 3rd it showed a stable appearance with no definitive activity.  My Oncologist said the appearance is similar to remission, but they use the term "stable".  I am due my next follow up CT, it being the 4th, at the end of this month.

    I am assuming your husband will be having the SABR on such a small lesion, if that is the case, the usual sessions are between 3, 5 or 8, dependant on size.

    Regards, Ann

  • Hi Ann thank you so much for all that information.

    So pleased your treatment as such brilliant results.

    I was never quite sure if stage 4 ever went into remission or just classed as stable.

    Wishing you well & thank you again for your replies.

    Teresa