Lung / Adrenal Cancer

Im getting small 1/10 pain sensations in my Lung and a hissing noise when i breath, im also getting slight 1/10 pain in my left and right waist more so in the left, I only cough at night. With another 8 weeks until treatment, if thats possible, i wonder just how worst this can get for me and worry it will spread in those 8 weeks so any scans will be irrelevant surely.

Hi Mark. Unfortunately anxiety has a huge part to play with this stage of diagnosis, every pain we may feel we imagine the cancer is getting worse. Please rest assured that your medical team would not leave you for 8 weeks if they thought the cancer was going to spread in that time. 

You have a very stressful week ahead of you with the scans and biopsy, but this is one step closer to the full diagnosis and treatment starting. One day at a time, brings you closer. 

Thank you, its my biopsy today, does anyone know if i can pay to get the results back more quickly.

Ive forgotten the name of the group that deals with living with incurable cancer, could someone post the link please as i cant seem to find it through search.

Hi Mark, biopsies take so long because they add things to the samples and observe changes.  In my case it was hormones, they added estrogen and the tumour grew, added estrogen blocker and it shrank. So even a private biopsy would take time. On average it is 10-14 days.

You can find the incurable group here 

 Living with incurable cancer forum - patients only 

Good luck for today. 

Good Luck for today Mark

Thank you both.

Julie ive just read your homepage again to try and give me some hope, if i can just mirror your experience i would be so pleased, I just need a chance and good news from the Biopsy and MRI would give me the fight because at the moment im letting myself down, this week has just been coffee shops the pub and tears at night for my wife and I, Ive stopped the gym but i plan to go back next week.

Im not sure if you were the same Julie but i have tiny pains where my tumour and adrenal gland is, like a blunt needle pushing a few times a day and ive noticed a tiny raised bump on my chest which i assume is a lympth node, im really slim so its noticeable. Also when i think about brain cancer i get little twinges in my head and im so anxious at times its off the chart.

Ive only told my wife this, im scared, not for myself but mainly for my wife and family who rely on me at times.

I just want a clear Brain MRI and a chance from the Biopsy and i will fight.

Totally confused now.

My Biopsy went fine and they took some good samples and sweeps, then my MRI was cancelled by the consultant without telling me, now i have two consultants disagreeing, the first says the brain MRI is not needed as the treatment will be the same anyway and the second told me if it was in the brain it would be treated first.

Meanwhile i rebooked the MRI for saturday, now im unsure what to do, does one consultant think its a waste of time because of my prognosis, do they think it may scare me as there may be traces there that i would not know about anyway if treatment cleared it up, other than the odd twinge in my head from stress i have no symptoms.

the MDT team will apparently discuss me on tuesday with the initial biopsy findings, not sure what that means and they say im probably going to go on Chemo and Immunotherapy.

The MDT meet tomorrow and will discuss my condition, they say they are going to call and im dreading it, 

something has happened in my lung though, this morning i felt the worst i have with a shortness of breath for the first time, now strangely the wheezing that has been with me for nearly 5 weeks has stopped? and im not short of breath? im concerned the tumour has covered the branch in my lung completely now and maybe that is why or has it moved.

Why would the wheezing stop on its own, ive had no pains for around 9 hours which is also unusual.

Has anyone else experienced this.

Hi Mark. Good luck for the MDT meeting today. Reading back through your posts I can see there was some uncertainty around MRI’s so I hope that is sorted today. 

Im not sure why the wheezing and pain has stopped, but I would have thought that if it had spread it would be worse not better. Hopefully today you get some clarity. Please let us know how you get on. 

Hi Mark I too had inoperable diagnosis and the waiting for results is excruciating beyond words. I will have everything crossed for you today and am sending you loads of PMA as having a positive attitude has certainly helped me get through this not to say I haven’t had low days but on the whole try to be strong as I’m a single parent of 3 and am not ready to leave my children yet. 

  Be strong.