Fatigue

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My husband has stage 4 lung cancer EGFR positive. Currently on 160mg Osimertinib. His fatigue is horrendous!!! Sleeps all of the time, cannot really function tbh. Anybody got any advice, tips for me pls

  • Hi, sorry to hear about your husband diagnosis, subsequent treatment and fatigue. I don't have experience in his treatment, my treatment was just radiotherapy on my lung cancer. I hope somebody who has experience of this fatigue on the same  treatment will reply with some advice. 

    I have just read up on the side effects of Osimertinib, but they don't seem to mention fatigue. I would ring your cancer nurse specialist and mention about the extreme fatigue, they will be able to help you with advice, and if they feel your husband needs to be seen by the consultant they can arrange that for you.

    Best wishes.

    Ann

  • hi I’m so sorry to hear your absolutely awful time you’re having must be so stressful and traumatic for you and your husband. We had a similar issue with capacitabane chemotherapy tablets for my husband‘s oesophageal cancer and the Oncologist halved the medication to stop the fatigue And said it would not affect the success of the treatmentperhaps you can talk to the Oncologist and see what would be the best way forward for treatment that would assist is recovery. I sincerely hope and to half the fatigue he’s suffering. I sent you my love

  • Hi 

    has he had blood taken recently just incase he is a bit anaemic? I had anameia with chemo and felt completely shattered x hope he feels better soon x

  • I agree with  it might be worth getting his bloods checked. All cancer treatments can mess with your bloods, and if one thing isn’t quite right it can effect how breathless or tired you are. 

    I have just copied this below from the cancer research page,so I would definitely make your husbands team aware. 

    What are the side effects of osimertinib?

    Side effects can vary from person to person. They also depend on what other treatment you are having. 

    When to contact your team

    Your doctor, pharmacist or nurse will go through the possible side effects. They will monitor you closely during treatment and check how you are at your appointments. Contact your advice line as soon as possible if:

    • you have severe side effects

    • your side effects aren’t getting any better

    • your side effects are getting worse

    • the side effects are affecting your daily life

    Early treatment can help manage side effects better. 

    Contact your advice line immediately if you have signs of infection, including a:

    • temperature of 37.5C or above
    • temperature below 36C
    • severe skin reaction

    Signs of a severe skin reaction include peeling or blistering of the skin.

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • I agree with Jonsey about getting his bloods checked my husband has stage 4 lung cancer he was on Carbaplatin premexted and premumblizab he had extreme tiredness and dizziness and breathless turned out he needed a blood transfusion now on maintenance dose of premexted/keytruda tumours have shrunk