Looking for anyone with this rare cancer, I was diagnosed yesterday and will be starting a medication called Retsevmo
Hi Eryl I haven’t heard of Ret myself, so have done a little searching on the site, and think Retsevmo is also known as selpercatinib. I have added an information sheet below for you, just click on the link. I think Ret must be a rare lung cancer, but hopefully someone will be along and share their experience with you soon.
Hi Chelle
yes it is a rare form of cancer. I’ve found a Facebook group, it’s based in the States but, it’s something to be going on with. It’s always so good to find someone with the same condition. Just collected my 1st prescription so going to start taking them tonight. Your story is inspiring, I’m aware of the importance of keep a positive attitude.
thanks for your reply
Eryl X
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