Anxiety

Hi Tillyboo  it is natural to feel anxious. This is a situation that neither you or your husband have been in before, and it is terrifying for you. Have you spoken to your GP about your situation and your anxiety? 

I know I have shared an information sheet with you before about zometa also known as zoledronic acid. Whether it will help with pain relief and how long that may take, you will need to speak to your husbands medical team about. I am sure they will go through it all with him before he starts it. 

It is good that he is going out every morning, even if it is only to the shop. Try to encourage him to continue with this. Short outings are better than not at all. 

I've been under my GP & on meds since the start of this, but I seem to be feeling worse. Still feels unreal

I’m sorry Tillyboo  it’s terrifying isn’t it. I know I felt like it wasn’t me that had the diagnoses, but it was all happening to somebody else and I was just watching. It’s an odd feeling. Im so sorry, I wish I could tell you how to make all this go away, it’s an awful time for you both. All you can do is try and remain positive, he is having immunotherapy and there are some truly amazing outcomes from people who have had this treatment. 

And now just been told he still cant start the Zometa as his calcium levels lower tgan a month ago even with taking the calcium meds given & eating all the right foods.

The one thing bothering him ie lower back/leg pain & he cant have the treatment for it. So christ knows why his levels dropped from 2.07 borderline to 2.02. I'm worn out with the worry of this. And he just feels like giving up, as sitting in day in day out because of worrying about legs giving way, isnt a mentally good way to live.

Just feels like one thing after the other, he was so happy to be starting this Zoneta on Thursday & now its a no. 

I feel like screaming TBH!

Oh no! That is disappointing! When are they going to re check his bloods? 

He only had them done Friday, so no idea. So doctors ringing this week as none of it makes sense. To have 2.07 borderline calcium just under 4 wks ago & been on ADCAL since then & eating calcium enriched foods, to find out its dropped to 2.02 is confusing. We were initially told it was the dental check up stopping Zometa, had to pay private to get all that work done, that we couldnt afford. To be told it was also calcium levels low as well, nobody told us that.

Just so disheartened, he feels like 1 step forward & 3 steps back. 

His 2nd Immunotherapy & when the Zometa was due to start is on the 16th May & the day before are bloods etc

Just feel like limboland again. Hes convinced theres something more going on as every single thing he gets now, pain, itch, twinge etc he thinks is cancer.

He was on loop diurectics for fluid retention just before having bloods last Friday & wondering if its those thats caused the calcium drop.

It could have been that, that is certainly something to ask the doctor when he phones. 

Yeah. Cant think of anything else, hes eating so much calcium enriched foods plus the ADCAL 3. We're shocked, even the nurse was surprised.

But who knows, just guessing whats going on is sending us crazy.

I thought Zometa strengthened bones & would put calcium in, obvs I'm wrong. So wait to see what doc says, she did suggest oramorph for pain before treatment started, but she along with my husband was reluctant to start such a strong painkiller, when pain isnt so severe. Just niggly & affecting the left leg, a bit like sciatica..

I think its just all this as been going on since January & had one immunotherapy & no udea about Zometa & its May next week, a lot of time as passed & we just thought life would have some normality back by now. He isnt ill as in coughing etc just this leg thing,