Terrified & confused

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  • today my husband had an appointment to discuss pet scan results, after a suspicous x ray & ct scan with dye.
  • No pet scan results as not back. Doctor just said looks like lung cancer possibly in lymph nodes. MDT meeting next Tuesday to discuss results & biopsy to follow. Not sure which one, as neither of us can take it all in.
  • I always thought cancer was only diagnosed after all scan results & biopsies done?
  • All doc did was showed the ct scan of the lung mass. Sent my husband for a blood test, clotting I think as hes on thinners. Shes them telling me 5 days before biopsies/surgery thinners stopped
  • Requested a brain scan as well.

Is all this normal procedure? I cant remember half of what was said. 

Can cancer be diagnosed before all results in?

Not sure I've posted this in the right forum, as the link that was recommended wouldnt work

Devastated doesnt cover it....

  • So sorry to hear what you're going through. Can I ask, what size mass is urs? My husbands 5cms with an inflamed lymph node

  • Mine is 5cm right upper lobe nsclc

    • Yes, they know. I think it's protocol they go down this pathway , it needs looking at , we all have to go through this mental torture , it's not right this day and age. I'm sorry your here , have you got a treatment plan in place x
  • I must admit the staying positive is impossible, with my family history, my positivity left me a long time ago. My husband cant cope with illness or anyone whos ill. He had a stroke in 2018 & in 2021 a benign pituarity which burst ( very rare they burst) he heard the word tumour & straight away he thought cancer. So he as a non functioning pituarity gland & as to take medication to keep his body hormones functioning.

    And now this....we're tired of illness getting over illness to be smacked in the face by yet another illness.

    Hes not the sort of man to talk about things, relies on me. I'm all out of strength as I'm unwell. So I just dont know how we'll get thru this.

    I'm ringing the cancer nurse number I have to ask questions with pen & paper & my husbands going away for a few days ( running away) as he cant cope with just sitting & waiting. He says he'll be surrounded by people who dont know him & he wont av to talk about cancer. 

  • His is right lower lung I dont know what nsclc is?

    Did u av an inflamed lymph node?

  • must admit the staying positive is impossible, with my family history, my positivity left me a long time ago. My husband cant cope with illness or anyone whos ill. He had a stroke in 2018 & in 2021 a benign pituarity which burst ( very rare they burst) he heard the word tumour & straight away he thought cancer. So he as a non functioning pituarity gland & as to take medication to keep his body hormones functioning.

    And now this....we're tired of illness getting over illness to be smacked in the face by yet another illness.

    Hes not the sort of man to talk about things, relies on me. I'm all out of strength as I'm unwell. So I just dont know how we'll get thru this.

    I'm ringing the cancer nurse number I have to ask questions with pen & paper & my husbands going away for a few days ( running away) as he cant cope with just sitting & waiting. He says he'll be surrounded by people who dont know him & he wont av to talk about cancer. 

    I posted this to myself somehow, heads all over the place

  • Yes chemo and immunotherapy starts Friday I’m scared stiff to be honest, it’s the side effects that I’m dreading but it’s something I know I have to go through and pray for the best 

    1. I wish you well . You go kick this cancers ass . Please let us know how you get on . I will keep you in my thoughts and prayers for Friday
  • awww I absolutely understand how you feel, even now my head is all over the place and will continue to be through this journey but believe me when I tell u that being here amongst other people going through what we are going through just gives us that little bit of peace for a short time and helps us through this journey. I’m not sure the nurses will tell you any different than what the specialist has told you as I tried getting answers out of them before my diagnosis but was not told anything except false hope until after the biopsy, it is such a scary time just sitting and waiting I know how your feeling, vent your frustrations out here we don’t mindBlush

  • Thank you Jnet, I will let you know how I get on with the treatment