Extensive Small Cell Lung Cancer

my heart goes out to you 

this is what this forum is for to share and experience with others the stress and pain of this awful illness

My first on this is why the delay ?  I would be fuming that the start was November and its now mid February - is there a reason from the doctors ?

I send you hope don't give up and I hope you receive replies from the forum to help

love

xxx

Hi Donna , you have my thoughts with you . This is a devastating outcome  one I have just  come through  with myself and family. I have spent twelve months waiting to be told they cannot do anymore  only comfort  care.  I have had radiotheraphy, but its made me too ill now for any surgery. Hope the chemo  is a help for your mum. I have been given a similar prognosis as your mum . Just had a lung drain to try and improve my breathing. We were given every  suggestion that my tumours were operable by Keyhole. How does anyone cope with this with no back up  even to talk too . Now I am back to trying to talk to my GP about symptom control, nobody seems to care about the patient or the family who is coping  with their feelings too. Just join a forum all in the same boat. Its so sad  that cancer is still killing so many people often prematurely. Think positively they say  how can you be positive? when all the reports are so negative. The chemotheraphy will no doubt make your mum feel a bit unwell  so take care and cherish what time you do have together will be thinking of you.

Hi Speyside1

Thank you for your message. 

My mum had a slight cough for about 3 weeks so in November she had a scan the doctors said her scans were clear, when my mum’s voice changed in December she went to her GP who referred her to ENT, we got the appointment for the beginning of January and it has been test after test since then, we got the diagnosis on the 28th January (mums birthday). 

Her Chemotherapy start today, I am so nervous and worried she will just go down hill from here. She has been well in herself up to now. 

Glad I am not the only one who feels that way, anyones  mental health would be disturbed with some of these diagnosis and the prognosis for lungs is poor causing depression for many. I found at my hospital results are not forthcoming till next appointment with oncology . But you should have a nurse you can contact for results or your GP .  My Gp is aware but I am now coming up to the stage for a 12month reveiw of my Cancer status , its just worse than when we started in 2023 with an Xray. Good luck with your result maybe it might be treatable, mine is past that stage now due to delays.I am now inoperable. 

Hi Katiec60

I am terribly sorry about your news. I will keep you in my thoughts.

Cancer is so cruel and I really hope one day they will find a cure.

My mums Chemotherapy starts today, they will be giving her a lower dose as they have stated it is not to cure the cancer but to relieve her symptoms. Up to now she been quite well in herself just a bit more tired throughout the day. I am worried she will now go down hill from here. She is trying to stay positive but as you say how can you when all you hear is negative news.

I hope your GP helps you with your symptom control. 

I also hope you get a little comfort knowing you are not on your own and we are hear if you need to have a chat or a rant.

x

• I'm so sorry to hear this news for you. It shouldn't be like this for anybody this day and age . My thoughts are with you and your family ️️️

Thank you for reply , hope things go OK for your Mum today  and the treatment does not make her feel worse. Treasure every moment you get together  x

Hi DonnaT

Very sorry to hear about your mumfor her,I’m  battling Prostate Cancer and stage 4 NSCLC not curable but treatable hope you get some peace of mind Robert

Hi DonnaT,

My cancer sounds similar to you mum's so maybe I can offer you a bit of hope. I also have extensive SCLC (although it was originally NSCLC that somehow mutated into SCLC), there's a tumour in my left lung, mets in the liver.

I started chemo in May 2023, the first doses are a shock to the system and will probably make your mum quite ill, but there is lots the health providers can do to ease symptoms, so make sure you contact them for help.

Since then, I've been on and off various chemos and treatments and have felt pretty well at times and been able to do many things I want to do. There's ups and downs and obviously everyone responds differently. I hope some of this helps.

Sending best wishes to you and your mum,

Jen

I’m sure we will be thinking of you and sending strength to you and your mum