Finally have a diagnoses of what is happening in the lungs alongside my womb cancer (found at same time) - for the last 5 months they have assumed they were mets to the lungs but it is now confirmed as DIPNECH and two carcinoid lung tumors, after the lung resection. Would very much welcome any experience of this ?
Hi Tangle123 I have done a search of the site and unfortunately I couldn’t find anything about DIPNECH. I understand it is a very rare condition where the cells in the lung grow and change into a carcinoid tumour.
I wonder if you have a specific question regarding DIPNECH if you would want to ask the question in the Ask a Nurse group.
Sorry I cannot help with this, but just wanted to ask how you are feeling now after the lung resection?
