Hi everyone,
My granddad has had:
- CT
- PET-CT
- EBUS (biopsies taken)
- Echocardiogram
- Lung function and 6 minute walk test
- Bone MRI (clear)
He's been to see the consultant today and he has said they can't say if he has lung cancer or not? He has a small shadow/nodule on the right lung. Consultant seems confident it can be treated if it is cancer.
It's been suggested he has another scan (not said what this is, but can't be PET-CT as the scan is at our hospital which only has MRI and CT) and potentially a needle aspiration biopsy?
Has anyone had experience of this? Are the odds in our favour? Any idea what the scan is? Is the biopsy safe?
Can't believe he's had all them tests and biopsies and there is no diagnosis!
Katie x
Hi yes I have been 5 months in the diagnosis phase so far. I have multiple tiny nodules and a couple slightly larger but still too small for a PET scan. A ct guided biopsy failed. So had a lung wedge last week. I have been wanted by my oncologist that even this may still lead to a less than clear diagnosis - I don’t really understand why - and whilst we wait for pathology the range of options means no treatment as yet.
Hi I can only say what I would do
I would keep phoning I would request another appointment to see your consultant I would ask for another try at a lung biopsy ask for a CT scan with contrast. I was appointed a pathway navigator I would phone her to say that I’m worried time is ticking by and I’m not getting close to a diagnosis keep asking.When I had my lung biopsy I was face down in/out of the scanner while they were marking the position and I was told the most important thing was me not moving a cm mine was small but they got a sample he said because I never moved a cm it made his job successful I hope you get answers soon
Hello Katie, from another Kate. I have been going to respiratory & cancer for almost a year . This week after all the tests they actually told me my cancers are small T1 and sent me for another scan. This is the second in three months. But on reading your post I just thought I would think a scan is less invasive and more comfortable than a biopsy but the biopsy is more positive for results. Some hospitals now are insisting on Biopsy before any treatment is given. My biopsy was positive but I have not had any treatment to the biopsied tumour to date. Every case is different , hope this helps a little on your husbands journey.
I had lung cancer and an op so clear for 2 years as I was not well enough for back up chemo at the time Two years on I have a reoccurrence on the suture of the old would site I have asked a lot of questions and as far as Ivan work out measurements can show different things to a pet scan I also had a failed biopsy because it had been caught really early and I found it difficult when they said radical treatment with chemo and radiotherapy and to be honest it took a lot of my children’s persuasion as I am 75 years old and was very active and was weighing up against quality of life as well as far as I understand a positive biopsy is the only confirmation of cancer but they deal with thousands and I think they know when it is cancer Sk today I started my first chemo and radiotherapy together and honestly I feel fine the people are wonderful at the hospital and so friendly but I know this might not last but hey I ll take any positives so I hope any of this can help you although everyone is different and the advice on here is great
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