New diagnosis T4N3Mx

Thank you so much, you’re right,  I’ve been so worried and afraid, it sounds silly but this is the calm before the storm as I’ve not seen anyone yet and I think I’ve gone in to denial mode so I’m feeling a bit more relaxed. I’m even sleeping ok at the moment which makes no sense. I think I’m just enjoying the small amount of time before reality really has to kick in. I’ve made the  decision that no matter how bad they tell me it is I’m going to fight with everything I have to stay here as long as I can. I have a grown up daughter and step daughters and four grandchildren that I’m determined to watch grow for a bit longer yet. So hopefully they’ll throw everything at me and I’ll get the chance to prove them wrong. Thank you for your support, take care ️

Thanks for your message over 15 years I also had a tumour on my spinal code which they said was terminal I went through an operation which left my requiring a wheelchair permanently also chemotherap & Radiotherapy finally I went into remission after 5 years despite them saying nothing can be done apart from manage the symptoms, so they not always right. I live my life to the full and never sto fighting and you too also have the right attitude, stay strong and never give up. Take care ️️️

 Sisterchic11  wow well done you ...yes they've told me that they are afraid this one will.compress my spinal cord which is terrifying me ...I am just praying radiotherapy stops it growing ..its 7cm x 6cm so its quite large and advanced ....you are so strong but like you I am going to fight!!!

Hi Scared 75

I thought I’d update you on what’s happening, I’m having a neck needle biopsy today, apparently I have a swollen lymph node there and they said it’s a less invasive way of determining what type of cancer I have. If it’s not helpful I’ll still have to have a lung biopsy so I hope the neck biopsy tells them what they need to know. I have an appointment with a thoracic consultant on Monday morning so I’ll  definitely find out more than I know now and I have an MRI scan on my spine at a completely different hospital on Monday afternoon to see wether the shadows on my spine are cancer or rheumatoid arthritis which I’ve suffered from for 30 years. Hopefully after that they will work out a treatment plan for me.

i hope you are doing ok, how is your treatment going and how are you feeling. I’ve had a week in denial so feeling quite calm at the moment, I’m sure after Monday it’ll be back to the anxiety and trepidation again. I’ve never had so many changing emotions in my life I’m sure you can relate. I’m here if you need it.  Sending hugs  

Best wishes for your needle biopsy and all the best for your spine appointment & MRI on Monday. I really hope work out a treatment plan for your soon. Glad you feel quite calm, it’s not an easy process to go through, Emotions all over the place, I’m here if ever you want to chat. Plus there is good support on this platform too which is so valuable.

my chemotherapy is going ok, not too many side effects at the moment  apart from fatigue and nausea. Trying to stay as positive as possible. Sending hugs back to you ️️& anyone else that need hugs ️

So I've had my 4th radiotherapy session today ..final.one tomorrow ..thankfully I haven't had any side effects yet so thats a positive...from memory I will now have a 2 week break and then start che ..I can't even remember how many sessions I have of that but will speak to my nurse ...praying these treatments are having a positive impact ️

Hi Scared 75

Ive been thinking of you and I was wondering how you’re feeling and how you’re getting on with your treatment. 
Im still waiting at the minute, I’ve completed all my tests,  ct and mri scans, lymph node biopsy’s etc, I’ve seen the thoracic consultant who confirmed what I already knew, I have lung cancer on both lungs, it is inoperable and incurable plus the fact that the shadows on my spine are also definitely cancer and I have lymphangitis which is inflammation of the lymph vessels. I’m waiting for my oncology appointment now which I’m sure will be coming soon. I’ll just be glad when I have some sort of plan so I can really start to fight this thing. I don’t want a prognosis, I just want to get through it and prove the statistics wrong. I really do hope you’re doing ok, how was your radiotherapy and what other treatments have they decided on for you.
Best wishes, Jools 

 Scared 75 I feel exactly the same. I haven’t had a full diagnosis yet - hoping today and tomorrow will bring that. It’s overwhelming. I have virtually no symptoms - just a persistent cough which until 2 weeks ago I thought was left from a virus I had. Suddenly I feel my life may be over. 

Hi everyone ..I've just had a call from the hospital asking me to go see my oncologist tomorrow ..I finished radiotherapy just over 2 weeks ago and don't have a date for chemo to start yet ..is this normal to have to go back to see the oncologist ..feeling afraid 

Good afternoon

Sorry you are feeling afraid, But yes it is quite normal to see the oncologist before you start chemotherapy. I did. and still see the oncologist regularly, You will probably also have regular blood tests before each chemotherapy session.

All the best for your appointment Tomorrow hope the oncologist puts your mind at rest.

Take Care