Stage one lung cancer 33 years old

Hi I’m stage 1 it’s my right lung and I’m having surgery on Tuesday. I started off having xray, CT scan , PET scan then a lung biopsy to 100% confirm . I have been to Wythenshaw hospital to meet my surgeon just a few more days then it will be behind me . The surgeon said they will be keeping a close eye on me and I will be having scans for 5 years . 

I have incurable lung cancer stage 4 my treatment is keeping me stable and enlarged life expectancy imunotherapy 

Keep positive there is a solution I'm sure 

Hi HiddenGem I am sorry to hear of your partners diagnoses. I know how terrifying this will be for you both. Years ago being told you had lung cancer seemed to be a death sentence, but it really isn’t like that anymore. Treatments and early detection, have made it possible for so many people to be cured, or to be able to live much longer lives than was ever thought possible with this disease. 

I have seen that you have you only joined the lung group so far. The lung group is great for sharing experiences with treatment, but you may want to look at joining the Family and friends forum and the Carers only forum where you may be able to connect with other people who are going through a similar situation to yourself. 

You can also call the Macmillan support line on 0808 808 00 00 who are available 7 days a week from 8am until 8pm. 

Hi HideenGem very sorry that your husband’s been diagnosed it must come as a shock to you all,here on the forum we’re all here for you and are a hardy bunch,try to keep his spirits up and not get into a rut,but we all know it isn’t easy,sending hugs xxx,Robert 

Hi,

My heart goes out to you both, you must feel like the bottom has dropped out of your world. The good news is that it probably hasn't, and I'll tell you why.

First off, stage 1 is way earlier than for most people so a cure is highly probable. Blimey, I didn't find out until I got to stage 4 with symptoms from a brain tumour and that was 6 years ago but I'm still here.

Next, instead of looking on this as a disaster (okay, it's not great, but even so...) look past it and use it as a spur to make those lifestyle choices that will prolong healthier life. Do that and he might end up living longer and better than otherwise. (See where I'm going here? Taking survival as a given.)

What else? Some treatments can be tough to go through, and most do it in their 60's at a later staging. He's half that age, with all the resilience that comes with that and catching it way early will allow for kinder treatments too. Wait on what the doctors have to say before assuming the worst.

Kind regards
Steve

Thank you so much for your kind words. Thats exactly how I look at it but unfortunately my fiance hasn't took this well and it's hard to see him going from being bubby and care free to anxious and low

Hi , I remember when I got my diagnosis  , I felt everything implode and start worrying about everyone . Once I got through all the tests and was given a treatment plan I settled down . How far along in the process is he ?

I think most hospitals have a macmillan centre attached to it, there are people in there that he can talk to . There is Roy castle lung website as well .  I was assigned a clinical nurse who gave me there number and I called them a few times .   Avoid googling the information can be out of date.  I had surgery may 2023 , I was up walking around within hours.  

Hi Jensan I noticed in your comment that you are receiving immunotherapy. I have been told that is the treatment that I will be getting. Just wondering if you could share your experience on it. Thanks Sharon.enjoy your day and stay positive x

Hi HiddenGem. I'm really sorry you are in this situation and sorry I didn't see your post sooner.  I was diagnosed last year with Stage T1b NoMo. Wasn't expecting it as it was my hubby who they were actually testing for bowel cancer. He was fine but I had a lung scan and got the news that it could be cancer. Cut a long story short. I had treatment last year, finishing my radical radiation October 6th 23. One year on and 5 CT scans later there is no sign of any recurrence. Your partner is at a stage were he can "kick its ass". I was terrified, now, everyday is a big bonus for me. Sadly, I'm not young, 70 years old, but your partner has a much brighter outlook. Mine was inoperable due to where it was, but im still here. I'm sure he will be fine. It's really hard to digest. I couldn't talk about it with anyone, I don't think i had one conversation with my hubby and kids about cancer in detail. The only way I could handle it was because I made myself believe they were talking about someone else at appointments and I just happened to be in the room. Give him time. I'm sure he will talk when he feels in a good place to talk about it. Look forward to your wedding, which I am sure will happen. He will be fine hunni xx

Hi Hidden Gem.

I realise this is a few weeks old, so things have probably moved on for your partner, but has he been offered a cancer DNA blood test?

Lung cancer in non or light smokers or under 50 could be because of a gene mutation that is easily detected by blood test. A trial of cancer DNA testing was extended in March this year so could still be available.

I was a light smoker 25ish years ago, but haven't had a cigarette for 22 years and was diagnosed with stage 4 ROS1 lung cancer after suffering liver pain. 

The targetted treatments available are much easier on the system than traditional chemo. 

Thankfully as he is only stage 1, there aare multiple avenues of treatment available fir him. 

I hope he's doing OK.