Hi all,
First time posting and feeling a little lost.
My mom has NSCLC, unsure of the stage but it had already spread to the glands by the time we found it, so treatable but not curable. She's been in treatment for two years, on immunotherapy only for the last year or so, and so the hospital has now stopped treatment. Unfortunately, instead of a doctor or consultant (or anyone for that matter) organising an appointment or a phone call to let her know, she went in for treatment yesterday and was sent home by the receptionist telling her her treatment has finished. While it wasn't a complete shock, the manner of the update was less than ideal.
Aside from the fact that our hospital has dealt with this terribly and we have to wait a couple of weeks to speak to a doctor (my mom should be pushier on this but she won't be), does anyone have any experience of being at this stage and what to expect next? I feel so grateful that we've even got to this stage but it feels pretty scary for everything to have stopped so abruptly.
Thanks in advance!
Hi MGI, I am so sorry that this has happened to your mum. That is really poor communication from the hospital, your mum should never of found out this way! I guess she had a scan prior to this treatment session, and that is why they have stopped the treatment?
I know you said your mum wouldn’t push for answers, but I would be calling my lung nurse to find out what is going on. 2 weeks left in limbo is a long time to wait!
