Immunotherapy stopped

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Yesterday my mum and I had an appointment with the oncologist and she has decided to stop my mum's treatment, she was due her second infusion on Monday.

My mum's not well enough to keep going, she's heartbroken as she knows that's it, we were told without treatment she could have 2 months.

I'm at a loss now, since diagnosis we've had goals to reach and she's met them, now there's nothing and I can't help or change anything for her

I'm absolutely gutted

  • My heart goes out to you all. I know ow scared you must all be. Loves and hugs to you all x

  • Hi Beachpirate

    Not sure there's much I can say to help you through this, I will say this, cancer is not a exact science so now it's over to your mum to see what her body can do. Make sure you plan to make some good memories make everything you can about staying healthy for as long as possible, just because they've said 2 months doesn't mean 2 months is all mum has. Whatever you do don't put yourselves on a countdown otherwise that's all you will focus on and that's not what you want to remember I'm sure. 

    You could have a chat with Macmillan I'm sure they would be happy to help you plan for the time your mum has left and I know they will make it as happy as possible.

    If you need a chat just message I'm happy to support you with this.

    Hugs Donna

  • Thank you, we have been making memories since she was diagnosed in February and we've decided to do Christmas early, she has alot of difficulties now with sight, mobility, etc which will only get worse so we thought do it early so she can enjoy watching grandkids.

  •   I am so sorry to hear the news about your mum. It is terrifying when we are told that our loved ones cannot have any further treatment. So now it’s time to think about the quality of life for your mum.  This is going to be a very difficult time for you all. When my mum was at this stage, I spent as much time with her as possible. It was very important for my mum to get her house in order. She made sure we all knew what she wanted, planned her funeral etc, and although that was very difficult, once it was done my mum felt better about it all. 

    Remember that although your mum has been told she will live for 2 months without treatment, it doesn’t mean she won’t live for longer, so try not to focus on that. 

    Please do call the Macmillan support line for advice and support on 0808 808 00 00. They are there to support you and your mum through this. Also if you have a Macmillan centre near you, or a maggies centre, these are really great places to go for a chat and support.

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Thanks, yeah we've sorted funeral plans and she's been sorting out what she wants to give people, at least she still has control of these things.

    I have stayed with my mum most weeks and been with her for scans, appointments and treatments.

    We've had days out and alot of laughs these past few months.

    I just feel a bit helpless now because I can't do anything more to help except be there for her

  • Good morning Beachpirate

    How are you and your mum doing today? I hope you are planning some activities that make you both smile, remember it's good to chat, if you need an ear I'm happy to lend you mine. Have you celebrated Christmas yet or are you still planning it, I'd be happy to through some ideas your way. For example decorating the Christmas tree could be a family event everyone could make something and bring it to hang on the tree.

    Hugs for the day for you both of you 

    Donna