Hi. I have recently had an upper right lobectomy following the discovery of a 3cm nodule/mass.
CT and PET scans showed it as malignant but that it had not spread to anywhere else. Location meant it was impossible to biopsy until the operation.
I am still waiting for the results so no staging etc but my specialists have already made it clear if the lymph nodes come back clear they will not recommend chemo, immunotherapy etc just regular scans.
I know I must wait for the results but in the meantime I just wanted to see if many other people in the same situation have had this recommendation. And possibly regretted it?
For your info, I am 64, otherwise healthy, haven’t smoked for 35 years and had no symptoms. The cancer was found by accident.
Thanks for any feedback.
Hi baytree
i had the same op 30/12/22, no spread thankfully . Get follow up scans & x rays. I don’t regret the op at all, my nodule was also found by accident. The only trouble I’ve had is frequent chest infections which I never had before the op (I’m also asthmatic) but I feel so very fortunate it was discovered in time. Wishing you well & hopefully you won’t need chemo/immunotherapy
Good morning lovely people.
2nd CT scan on 17 April this tear (R upper lobectomy Dec. 2022) recent scan has shown my middle lobe is compressed. Having bronchial lavage on the 23rd May. Letter to GP from consultant described it as possible middle lobe syndrome, GP unsure what this is. Regular chest infections but one in December this year & a few weeks ago really floored me. Throat is quite raw & my voice is quite hoarse. Anyone able to suggest any ideas on what's going on with me ?
Hi. Thanks for reply. Only three weeks since my lobectomy so too soon to say if I will have longer running problems like you. Hope yours clear up eventually.
So no talk at all about preventative therapy? I’ve read that recurrence rates are quite high.
Hi baytree
sorry for the delay in replying (mad day yesterday with repairs to my kitchen range !)
if it’s any consolation to you, I’ve researched on recognised medical sites. The occurrence of nslc is quite unlikely if no lymph node involvement but screening for 5 yrs post op should catch anything before it gets the chance to develop into anything to be worried about.
I relate my recurrent chest infections to my asthma & living in a rural area with heavy farm & agricultural traffic - lots of dust ! But as I said in my previous post , I feel so very fortunate in not needing any further treatment. I’m praying this will be the same for you.
take care x
Good morning lovely people.
2nd CT scan on 17 April this tear (R upper lobectomy Dec. 2022) recent scan has shown my middle lobe is compressed. Having bronchial lavage on the 23rd May. Letter to GP from consultant described it as possible middle lobe syndrome, GP unsure what this is. Regular chest infections but one in December this year & a few weeks ago really floored me. Throat is quite raw & my voice is quite hoarse. Anyone able to suggest any ideas on what's going on with me ?
Hi Indian. Thanks for the info. Good luck.. and keep well x
Hi Baytree
Lower right lobectomy and top segment. No spread just monitored.
Keeping fingers crossed as I am from bowel cancer group however the lung is another primary. I’m now being monitored once for both which is great. Been abroad since op and I’m fine but do now have allergies so I’m on antihistamines
Ann
Hi Artsie.
Thanks for reply. Could I ask you how long ago you had the lung op and if they even discussed therapy rather than monitoring?
Also.. a bit off topic... but did you find it difficult to get holiday insurance? We had an October holiday to USA (booked before all this started three months ago) and I'd still like to go if possible.
Hope the monitoring goes well and you continue to improve. A
Hi I'm new on forum I had upper right lung removed in june 23 due to cancer being found during routine healthy lung check I had no symptoms at all ive recovered well since surgery but find it difficult to know what happens now im also finding it hard to get travel insurance at a reasonable cost .
Hi Baytree123
So sorry I’m slow to answer I will check my settings
I had my lobectomy and segment had clear margins so there’s no further treatment at this time
The lobectomy happened because he wasn’t happy with the margins when he took the segment so he went back in and took the lobe and top segment
Insurance wasn’t an issue as I was in Spain with my brother and I checked that my EHIC card covered me if there was many problems.. A client of my brothers stayed one week in his holiday home in Spain during his immunotherapy treatment. The cost was.
sit down
Four and a half thousand!!!
So I think you’ll need to research insurance
Thanks for you well wishes. I wish you health and happiness and some good insurance prices.
best wishes
Ann
Hi Baytree ,I had a lobectomy last year ,right middle lobe ,it also was found by accident ,and i had no symptoms ,my nodule started out at 9mm ,but they kept sending me for checks and it did get bigger so they decided to do the lobectomy ,i had no other therapy afterwards as it had not spread to anywhere else ,yesterday i went for a 3 monthly check and everything was clear ,they do send me for scans every 3 months ,it took 2 weeks for my results to come through,i hope you hear soon good luck
Hi Christie,
Just got results back and now know I have to have therapy.
hope your scan results continue to be good.
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