Exon 20 mutation

Hi Buckle, sorry you haven’t had a reply to your post yet. I do not have the Exon 20, but I have heard from other members here who are, so hopefully someone will be along soon to chat with you. 

I think that immunotherapy is not very successful with exon 20, but there are other new treatments which are just becoming available. I will add a link to a post from Roy Castle forum about it. 
new-lung-cancer-treatments-approved-in-scotland/

Hi Buckle, I have this mutation, I haven't updated my profile in a while and to be honest I don't log on to this website very often but I feel it is good to be able to share experiences and support each other where we can.  On my profile you will see some info from September 2022 to Jan 2023, when I started my chemo and immunotherapy.  Pemetrexed carboplatin and Pembrolizumab.  I am now on "maintenance" chemo and immunotherapy as they have dropped off one of the more harsher chemo drugs.  I  had a partial reduction in the lung tumour from a scan back in April this year and my last scan results I received last week showing again a slight improvement and no further advancement.  I haven't just been relying on the chemo though and have been exploring and trying other natural approaches which I am happy to share with you.   My oncologist also told me about another "new" chemo drug that would be offered to me if my condition worsens but I was told that this drug is a lot harsher than what I have been on and I would lose my hair and probably have more side effects.  I am not sure if this is a road I would want to do down at this stage but I am just taking things day by day.  

If ever you or your husband would like to chat please feel free to make contact, thinking of you both, this is such a tough diagnosis to come to terms with but I think it is so important to try and stay as positive as possible and do everything to make life feel as normal as you can for all around you as this is what has helped to keep me strong.  Easier said than done, especially in the early stages of a diagnosis but I will keep you in my prayers and wish you all the best with this.  Sending healing and love x