Small cell lung cancer

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Hi, this is so alien to me to post anything on any platform.

my husband is 50 and had a stiff hip in January and after done with physio it didn’t improve so was referred. Things move quickly with an X-ray, MRI & CT. He had a small tumour on the lung and large lesion on the hip. After a failed biopsy in May due to pain but noted there were cancerous cells was given another one on the hip at the beginning of June which they couldn’t do it due to pain and transferred him via ambulance as they didn’t want him walk as afraid on fracturing his hip and sent to a local hospital. He then spent 3 weeks in a hospital bed not moving, had a UTI and some radiotherapy to hip and spine. Had an appointment last Thursday to say it was lung cancer that had spread to bone, adrenal gland and brain. My husband is a 6 ft 3 rugby player that now weights 12 1/2 stone, he has no muscles and is in a wheelchair. The consultant said she won’t do chemo and will see him in a month but gave us no clue on how to build up etc. I have spoken with specialist nurse who said it’s unlikely we’ll get him built up for chemo and he won’t be here come Xmas. He is still looking positive and doesn’t believe this is palliative care. How do I broach this with him and my children. Can anyone on here give me any advice? My heart is breaking 

  • Good morning pip (may I call you pip)

    I also have lung cancer with bones Mets, unlike your husband I don't know my prognosis. If you tap on my avatar you can see my journey so far. I'm not a rugby player but I do understand about loosing weight, since diagnosis I've lost a fair bit of weight and lost all my muscle tone. It's a good thing that he's being positive about his situation long may it continue because getting into depression won't help at all. I see the nurse has indicated to you that he can't be built up for chemotherapy and that he won't be here by Xmas, perhaps you and you husband might find it helpful to speak to Macmillan their number is 0800 808 0000. I might also add palliative care is not always about end of life, it can be about managing the situation and giving you a quality of life.

    You are in such a difficult place at the moment and I understand when you say your heart is breaking, you must take care of yourself whilst all of this is happening, the last thing you need is being poorly yourself, so at least call the helpline and get some advice for you.

    You talk about building your husband up, I assume you mean with meals etc, I have struggled with food due to my treatment, it all tastes like cardboard and can be difficult to swallow so to start with I found some great smoothies to drink, I eat breakfast cereals with lashings of cream on anytime of day and I find it easy to eat food that has a sauce with it such as lasagna, cannoli, anything with a nice tasty sauce, you could also ask the GP to prescribe some build up drinks such as forte juice etc. Small amounts of food taken often helps, I find trying to eat a large meal a task and I can't face it so eating small amounts often throughout the day is much better.

    I'm not sur how much use any of my advice will be to you, but I'm happy to chat with you anytime and just listen if that helps, I send prayers for you and your family and a big hug for you.

    Be kind to yourself and we are all here to help and support each other so freely free to post anytime there is usually someone around to respond,

    Have a good day Donna x

  • Hi, thank you so much for reaching out. It really is a terrible situation. Hopefully MacMillan will be in touch soon. Wishing you the best Pip x

  • Hi Donna I having problem finding you on freinds. Be trying over the last week.  Have you got your results from your scan yet if so hope all OK. I had my scan this week keeping my fingers crossed. Anyway hope all is well and you have a great weekend walking your 2 dogs Rob x